Sorry for the dramatic title but I’m starting to believe it is true.
Ok so just a brief intro of me - I’m 23, diagnosed in April 2016 (omg it’s already been a year) with RRMS and have been on Tysabri since August 2016. The Tysabri has been brilliant in that I have not suffered a relapse since. Although, I have just had confirmation recently that I have optic neuritis but I’ve had this before and it is currently mild.
My real issue is the fatigue. I feel like I’m running out of ways to deal with it and its affecting me in a big way.
I currently work full time but I get so tired during the day that I can’t concentrate and feel like I have to sleep right there and then. Everything just feels really heavy as well, especially my arms. I am currently on sick leave. I have told my manger (and gp who provided the sick note) that this is because of the optic neuritis but in reality this is because I’m exhausted and need a break for 2 weeks.
Since being home, I feel like all I have done is slept. e.g. yesterday, I went out in the morning came home at 12 and slept until 4pm. And even when I woke up, I was still tired.
I’m supposed to be starting my masters in September part-time while working full time. This has been planned since last year but as the days go on, I’m seeing it as being less of a possibility which has been really depressing. This has also made me scared for the future in general as I don’t know how it will continue to affect me.
I know that fatigue is very common for people with MS so I thought I’d post on here to get some ideas on how others deal with it. Literally, anything would help I think (this includes medication).
Also, if you are currently on Tysabri or another DMT, have you felt this has helped with fatigue?
Many thanks in advance,