Hi ther, I’m having a bit of a flare up of symptoms right now and waiting for an MRI. I have a lot of trouble typing and havealready pbeen locked out twice due to mistyping my reset password. The worst bit is urinary incontinence and all I got from my (very nice) GP was a discount for pads? I’m stuck until the MRI.
yesterday I had to fasting day and had no walking whilst leaking and swearing and no soggy underclothes. I’m growing to try again today and if it helps then I’m goingstay on this until the end of the month - or until te MRI .
i work as a professional Choral singer and had a funny turn after 2 intense hours of new music. It was that Eric Whitacre who did did it, I love the piece but lost all control of my left leg after a 2 hours and had to go home (another 2 hours). We stopped and I tried to walk and it was okay, so didn’t go to hospital.
i hat MS. I do okay normally and even managed to sing in Verdi Requiem ( full on operatic voice)2 nights with 40 minutes standin hopinroar that th next pageturn would have a ‘sit’ marked on it.
Has anyone else had an improvement after restricted calories or 5:2 or fasting?
On the facebook group for ‘Biotin for Progressive MS’ we have been discussing the fasting diet after research had been done saying how it benefits us with ms. l have been doing the 5- 2 since before christmas. For me - l have more energy on fasting days. And l find the regime very easy. l haven’t tried the 4-3 or Alternate Day yet.
l found the bbc programme with Dr Michael Mosely very interesting - and l bought the book - and since then bought Kate Harrison’s books on 5-2 [cheap from amazon] She puts the process over much simpler and easier - taking a lot of the worry about what or not to eat.
Apart from helping us with ms - it is also good for high blood pressure and diabetes. And of course for the brain.
Weightloss is another good feature. l lost about 20lb - but have stopped now at 9st 8. l would like to lose a bit more if l can -but to stay at that weight is a bonus. The more weight we carry - the harder it is for us to mobilise.
l can sympathise with your bladder problems. l started with PPMS 34yrs ago - and l lost complete control of my bladder right at the start. Spent years squelching around padded up - dreadful time for me -took all of my self-esteem. Then l had a SPC fitted and that has been a life changer. Now of course you can have botox -but you might then need to self - catheterise to empty.
l take LDN - and many people find it helps with bladder control. l know high dose Biotin has the same benefit - and so many people who take it are thrilled to be able to once again go all through the night without many trips to the loo.
Betmiga -is the newest medicine for bladder control. So much better then oxybutinin and detrusitol etc that make you feel so awful - they dry everything up!
l have always said that bladder and bowel incontinence is the worst of all MS symptoms.
I tried biotin, but LDN seems better, I have to be careful which farmacia I buy it from as one of them thinks you can’t take it with Rebif. I need packet of naltrexone. I’ve run out of pills and a packet lasts almost a year.
Id like to not walk around in toddler type pull-ups . But until my MRI I’m stuck.i want to feel normal again.
To get results from Biotin -you need to take it for at least 9months for good results. Some lucky people find it works well in just a couple of months. As it is also anti-fungal -it can make you feel worse for a while - which is candida die-off.
On top of taking a high dose D3 and all the Bvits - l also do the 5-2 diet and now Clemastine [Travegil] lt is a anti-histamine that is ‘supposed’ to help pwms.
As l am PPMS - and have had it for 34yrs - l do not fit in any of the criteria for DMD’s or HSCT - so anything is better then nothing. LDN l have taken for some years. lt stopped all brain fog and trigeminal neuralgia. Biotin gave me more energy - and the jury is out on clemastine - too soon to say.
I took biotin for 6 months and feklt no different. LDN is going right back into my medicines drawer as soon asoossible.itvdoesnt exist As a med in Spain so you have to make your own. Which means buying a packet of naltrexone. Not easy. I have a good long wekekends work ahead of me and I hope everything will be fine. My husband has just had a terrible virus and is now post viral. Poor man. He sat through 44 hours of Verdi rehearsals.
I’ve just completed my 3rd week of restricted diet. I’m going to have a weigh in later Happy to try it as weight starting to annoy me and had seen a programme that explained fasting and new neural pathways. Nothing to lose and still managing to take Tecfidera tablets ok on the restricted days.
On the 2 fasting days you can eat 500 calories - women. 600 calories Men. Eat what you like on the other 5 - but no alcohol. The 2 days do not have to be consecutive. lts best to eat your allowance in protein and lots of green veg or salad. So fish /chicken is the best. Eggs /Baked beans - try not to eat carbs - so you make the most of your allowance.
lf you are very slim - l can’t see that you would lose any weight - as you have no surplus fat. l lost 22lb then stopped losing.
On fasting days - l have a cup of coffee in the morning - as l cannot start without - then l do not eat anything until late afternoon. Just drink water or cups of redbush or green tea. l might have scrambled egg with smoked salmon. lf you only did it on one day a week you would feel the benefit.
l found that l could not eat the amount l used to on the ‘feast’ days. As my stomach - and appetite got smaller. Now l never manage to eat all my food. Always something left on the plate. Not wasted though with 4 large dogs!
Yes, I tried 5:2 before and found it tough, as so low calorie on the 2 days, like Spacejacket says 500 cals two days a week - I found that tough with my meds even.
The internet info on the mimic-fasting is quite simple, as they’ve only successfully tested it on mice so far so I’m trying to apply a bit of common sense - what I’ve read it’s half calories for 3 consecutive days and normal diet the rest of the time.
On the 3 days, I cut out tea etc. and just have water. In the morning I have full fat yoghurt with my tec. I have minimal lunch, maybe a cereal bar, evening is covent garden soup with bread, or some meat and salad (no dressing). And then I can still have some snacks. We get fruit, ricecakes, popcorn etc. for low cal snacks and some of the low cal soups are so low that I squeezing in a pudding or two
Because half cals for a woman is 1,000 a day and I’m not a big eater anyway, I’m trying to be sensible and I’m probably averaging about 900 - 1,100 cals a day. I’m not starving tho, and I’m intentionally doing Mon-Weds so I can still go out at weekends and eat what I want and even an alcoholic drink I had to idea wine was so calorific til recent years. My normal weight prior to MS dx was seven and a half stone…so creeping up towards ten stone was starting to panic me a bit if I’m honest. I was always petite and I now have more trouble getting about so really don’t want more weight to have to carry about either. My aim is reasonable, I’ve moved up two dress sizes and adjusted clothing accordingly - there’s no way I can keep replacing clothes so I won’t be going mad either!
If I can meet in the middle on that I’d be happy and if it does change anything symptom wise I’d be delighted obviously
I found a new food item too, mango popsicles - lush!
I’m on betmiga too and it seems pretty good in my book. I was actually pretty nervous about starting it as the idea of relaxing my bladder seemed all wrong when I was struggling with holding my bladder, emptying fully or going too often. But it’s amazing the difference it makes