Hmm hardly 4000 per annum is it, but the decision remains without any indication of what cost they would be prepared to meet , if any. What is the Ms society doing about this ? Has the question even been asked re what they would find cost effective.
Meanwhile Im looking at 4-AP and it would seem through anecdotal evidence that the optimum to take would be between 30-40 mg per day in 10mg doses, however because its not slow release it would mean ramping the dosage up slowly .I.E 5 then 5+5 then 5+5+5 then eventually 10+10+10 or greater depending on tolerance. Now heres the rub and of course its the cost. Best I can get it is 3 months supply for about £155 delivered from the states, which of course is cheaper than £190 per month for the fampyra here.
Next problem is convincing the doctor, who although is happy to prescribe me the fampyra, will take some convincing about the 4-AP. Truth is I am taking some convincing as researching it with all its different names ect is time consuming to say the least, so to present the case to a doctor who barely speaks english and has about 5 minutes time ig going to be difficult in the extreme !