Thankyou. As I missed two doses anyway and felt the effects of this, I have decided to stop taking fampyra for a week and see how I am. I have a kidney infection at the moment which is a possible side effect, and I don’t know if this is causing my legs to be worse or if it’s stopping the fampyra. I think the fampyra had stopped working for me, I have got worse since taking them, and I can’t cope with the interruptions and worsening caused by missed deliveries.
I was sure I read somewhere that for some people stopping fampyra causes their walking to be worse than it was before starting taking them and never totally resolves. It might have been anecdotal from people on here.