Forum

Fampyra

Has anyone tried Fampyra? I have just completed 2 weeks’ free trial but I have not managed much sucess and now I have finished I am finding worse effects with my walking than before I started.

I would like to hear other people’s views on this.

Maureen

Aw, that’s sad to hear but it’s not the first time I’ve heard this It’s sad it didn’t work out for you

Sonia x

Maureen,

There’s plenty of posts already about Fampyra/Fampridine. Suggest you perform a search of the forums (‘Primary Progressive’ in addition to this one) to get some kind of feedback.

Just to let you know, I trialled Fampyra a while ago (Last September …I think ?!! ) and had pretty much the same outcome as you’ve experienced. Helped a huge amount for the first few days, but then mobility went downhill severely after that point and is still worse than it was pre-Fampyra. Seems like I react the same way to all meds ?!)

Good luck!

Dom