Eyes..;-(

Hi Lally…that sounds painful…hope your new gp get the meds etc sorted for you…x

Hi Scoobie,

Glad to hear that your eyes are felling a bit better. It does take a while I’m afraid.

Sorry to see that you to are suffering Lally, hope gp sorts you out quickly.

Janet x

Hi janet…thanks hun…vison still quite blurred esp in right eye…but yes comfort wise much more tolerable…:slight_smile: x

Hi I to have had trouble with my eyes,sometimes I feel as if I have a shadow over it or the feeling that something is in it the only thing the optermolagistand my doc has come up with is dry eye, but they have checked the back of my eye and they say at least if it does have something to do with my MS there is no optic nerve damage as yet it’s a waiting game but sometimes I think what’s the point keep going to the doc as they say there is nothing they can see as to what is cousing the irritation S

Hi tatty…ooh sorry to hear you have probs with your eyes too…its good the drs cannot see any probs with the optic nerve as yet…but they can only see so far on eye exam…have they suggested an MRi? dry eyes do not usually cause what you describe…have you had any field vision tests done recently? am no expert…but it may be worth asking them if the problem is still there…I guesss inflamation can appear anywhere in the body…x

Hi Scoobie,

The steroid drops work brilliantly for me - had 'em before for a similar problem (as discussed earlier) - the improvement is almost immediate.

The only trouble is, you can’t keep taking them long-term, as they can cause thinning of the lens.

My GP was a bit reticent about prescribing them, for that reason, but they’ve been the only thing that had any effect whatsoever.

I’ve often wondered whether I have dry eye. It’s often associated with lupus, and other rheumatology disorders.

As I’ve been investigated by Rheumatology before, I always expected I’d be diagnosed with something in that line.

But then it turned out I have MS instead, which can’t explain the eye stuff.

I sometimes worry that MS still isn’t the full story, and I have something else nasty as well. I seem to get symptoms my neuro doesn’t think are related, or that most folks don’t have.

But full rheumy screening came out clear - twice! So where is left to look?

T.

x

Hi Anitra…thanks for your post.:–)…I am still inprocess of diagnosis whether it is MS or something else remains to be seen…

Not sure the steroid drops are working as well as I had hoped…but continuing…

Not sure what to auggest re your eye problem…maybe go back to your gp on that one? as you say long term use of steroid drops is not good…andits only treating the symptoms and not the cause…yes have heard the same re Reheumatic link with dry eyes…it can also happen if you are run down or after any surgery or infection…I would perhaps consider alternatives if your gp cant come up with other suggestions for finding out why you keep getting it esp in the left eye. Also maybe eating more oily fish…or seeing a homeopathic dr or even accupuncture perhaps?..just a suggestion or two there…I have only had it twice once in 2002 after my bladder op and then about 4months ago and only in the let eye then…

x

Hmmm.

Sorry to hear you haven’t had the instant improvement I noticed.

For me, they really are like magic; it’s just a shame they’re not a permanent fix.

I can go quite a long time without it happening at all, but I know, sooner or later, it’ll be back. Never found out what triggers it though. Doesn’t seem linked to the hayfever season or anything.

I never did get a diagnosis, only the “theory” that it’s an allergy. Plus I absolutely hated the eye specialist I saw: he was an arrogant, chauvinistic, g*t (pardon the language), so if I ever did go back again, I’m definitely not prepared to see him.

He was just awful. I was kept waiting all morning (hours) but he wrote on the paperwork that I’d been seen within ten minutes of arrival - an outright lie. He said straight away: “What’s this on your face?” - meaning my makeup - and tried to pin all the blame on that! Now obviously, I’m a woman, and have some pride, and didn’t want to go out of the house looking like I had a black eye, so yes, I had worn concealer. What of it? What woman wouldn’t? Ridiculous to suggest it was the cause of my eye problem, as I have had it many times, even when I hadn’t worn makeup for days.

During my consultation, there was a stranger present, who was not introduced, and I had to ask who she was and why she was there! Could have been his mistress, for all I know!

Then he tried to suggest it was an STD - even though I hadn’t been in a relationship for years - but I didn’t argue, as I didn’t know how long these things might lie dormant. So he put me on antibiotics anyway.

When I went back, he pronounced the eye much improved, even though it wasn’t - thus seeming to confirm his judgment that it had been an STD, and the antibiotics had worked - which they hadn’t!

In the meantime, my GP had done her own test for an STD, which proved I didn’t have one (no surprises there) - so of course the pills hadn’t worked!

Honestly, it was a complete farce, and he was just rude, horrible, and dishonest. I really thought consultants like that were a thing of the past, by now.

I already take regular fish-oil supplements, as I don’t really like fish to eat, and it’s supposed to be good for MS anyway. Can’t say I’ve noticed much improvement with the eye, although I suppose I haven’t had a really bad flare-up for quite some time. It’s always a bit prone to it, though. One eye always looks pinker than the other, even when it’s relatively trouble-free.

Still, I suppose that’s the least of my problems.

As I know you’re well aware, eye irritation can be incredibly frustrating and depressing, though, even when it’s quite well down the scale compared to everything else that can go wrong with us. :frowning:

Hope you do get some results with the steroids soon. You probably already know this, but you can get artificial tears to help with dry eye. Also I sometimes use Optrex Actimist, although it’s incredibly expensive (just my opinion). It’s fine enough that you can even spray it over made-up eyelids, without messing up the paint-job, so those of us who like to wear makeup, in spite of our consultants’ disapproval, can still do so. :wink:

Tina

Hi Tina…gosh your eye consultant sounds vile…no wonder you would rather not see him again! perhaps your Gp could refer you to someone else? So far my neuro eye drs have been great…a little evasive as to what they think is causing the ON…still in time they will say…or perhaps they dont know themselves!! lol Thanks re drops…my eyes were not pink at all…but so stingyand trying to foucus ahead seemed to make them sting even more…left eye pretty inflamed and inside of lids upper and lower very inflamed compared with th e right… am sure that by sunday they will both feel better…I dont ahve a follow up appt at eye clinic for the dry eyes…and not due to see eye neuros till end march.can I ask shoiuld I go to my GP to get them checked…that all ok re dryness? Would pehpas be a good idea to tell her of the other symtopms I have had last few weeks too…

em

Hi all…mmm eyes still not great…vision still blurred in right eye re anything further away from my eyes than the pc…also images are wiggling left to right and in left eye up and down…any ideas? 7th day on steroids…eyes more comfy but still stingy at times…despite lots of tear drops…cant get to my gp for her to check them until 27th/28th…could try optitions? Eye A&E didnt give me a follow up appt…lol Also feel nausea most of the time…and yesterday had my niece and nephew here…wasnt able to lift her onto my lap re left arm or pick him up either hes 3 and shes nearly 4… very tired too…had to go back to bed this morning and last night for an hr after my family left…my get up and go has vanished and on go slow…all the time…its pants!!

Hi again Scoobs,

Well, if it IS a neuro problem, they probably won’t be able to do much 'til you see a proper neuro bod, anyway.

The only likely treatment is steroids - if I’m right, you haven’t been on steroids yet (intravenous or tablets) - only the steroid drops?

I wouldn’t bother with Specsavers, personally. I’m not saying they’re not competent enough at what they do, but I don’t think they’ll be used to dealing with specialist eye problems, that may have a neurological dimension. You’ll just get told to go to the doctor - which is what happened to me when I did similar at Vision Express. They seemed vaguely irritated that I’d gone to them at all for a problem, rather than a routine sight check. Although they did check me over, they seemed a bit put out about it, and told me to go to the doctor. I’m not sure why I didn’t go to the doctor first anyway. I think, like you, it was on a weekend or something, or I couldn’t get a doctor’s appointment, so thought going to the optician would be quicker.

All a waste of time! They didn’t want to know about that kind of thing.

I honestly think doc’s on Monday is your best bet, and not to be too particular about who you see. I know it’s easier to stick with the same person, and not have to explain it all from scratch, but if that means a 10-day wait, it doesn’t seem like such a good idea. Perhaps someone at the surgery can use a bit of influence, and move your 30th March appointment forward?

Tina

Hi Tina…thanks…youre a star…but yes gp may be able to push things nearer re appt on the 30th…see what she says…

Ideally I would just like an eye person to tell me yep the dry eyes have cleared up…not necessarily the other stuff… my optition at specsavers has been ace…unlike yours at vision express…hes the one who picked up on the raised pressures in my eyes…re glacoma and wrote to my gp to ask me to be refered to hospital eye clinic(not the same one as I am at for the neuro eye prob)…he also saw dry eye in my left eye back in nov last year…quite mild then…gave me tear drops and insisted on seeing me 7 days later to re check…so my thinking is…dry eyes allot worse this time…so def feel I should get them re checked.

No not had any iv steroids or oral steroids re optic neuritis…apparently its not bad enough for that…ie if I had no sight in my left eye they prob would give me them…and research shows best not to give steroids unless its very bad in one eye or in both eyes…personally its bad enough thanks…and the pregabalin is helping and as I am unable to drive am taking that at night and during the day at present as would only usually take that at night time…re neuropathic pain elsewhere…

hope you ae having a good day…the sun is out here…still on go slow.lol still at least my doggies are fed and settled and I have had a shower too…so thats a start…lol

em

I was dx with fibromyalgia and a lot of the symptoms we get with my condition you also get with MS.

I have had problems with my eyes for some years and was given glasses for reading and glasses for long distance. I suffer with floaters and blurred vision and flashing lights also. I was sent to the eye hospital as i have a scar behind left eye centre vision which has caused some problems. I did also have problems with dandruff on the eyes well thats what they called the condition and was given eye drops to take. Was given glasses to wear but i find that the right lense of the glasses is comming a cross to the left but they told me that if can take about two weeks for eyes to adjust but when i was at the eye hospital they said i had a problem with the eyes focusing.

I am not too sure if i have been dx incorrectly as i have had severe numbness in the body for over two years and it is causing me problems as it effects my sensations in the body.

Hi Joj thnaks for posting.sory to hear you have had probs with your eyes too…yes there seems to be s crossover in symptoms re fibro and Ms and reading on here it is possible to ahve both…if you are having new problems may be worth going back to your gp on consultant regarding a second opinion. I already wear glaases, being very short sighted since the age of two and last year my optition said I needed reading glasses too…Ineveitable part of aging I guess…lol It may be worth going back to the eye hospital for a review if you are stil having the porblems as you describe…?

Quick update…lol

spoke to eye A&E and theywant to see me later today as vision still blurred in right eye. night vision is still pants too…also told me dry eyes is a chronic problem and will need to take the drops from now on…they didnt tell me that at last visit…hey ho lol

fingers crossed they can check my eyes out properly and look at back of eyes too as they didnt last week…and considering the other probs they should have…I dont think I have ON in the right eye…as my colour vision is ok…left eye is much the same as it was a month ago.as far as I can tell…less pain though which is good…left arm weakness still there but better than it was and some loss of sensation too…;-(…

Em x

eyes checked…still confused though lol

Seems it was wise to go down and see them in the eye clinic…didnt ahve to wait too long…very thorough…pressures ok in eyes,dryness much better but continue with celluvis as and when…eye dr said the blurred vision prob nothing to do with the dry eyes…and it may be coincedence that they both started same time…two weeks ago…he says cant rule out ON in the right eye aswell…but my colour vision is ok…can you get ON without affecting colour vision? I didnt think so…lol

so hes going to speak to the eye neuros tomorrow or weds…and see what they say but he will try and see if they will see me sooner than 30th march…esp as due to new eye probs with right eye…left eye is the same as before…no change…he had the MRi brain report up on the screen and kept going over one part with his curser… but couldnt go through it with me but my friend who came with me said she could see it but not near enough to read it…its about…15 lines long…surely if it was alll clear it would be much shorter than that!! Just guessing there…lol

So the neurological mystery continues…for now…I am just trying to get on with stuff…with one eye that is now blurrey too! the nurse said I should see my gp re arm/tiredness probs, funny taste in mouth etc… etc.

.