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DVLA And ESA Terror (long rant sorry)

I still haven’t had my dreaded ESA and have been freaking out about it.
I keep on waking up in the middle of the night in sheer terror about what’d happen to me if I’m regarded as being fit for work.
I was just thinking about the DVLA and driving assessments.
When l eventually got round to changing my address on driving license
(no problems had occurred with my driving), I had to go to a driving assessment before I got my new license, because it was on my medical records that I had cognitive issues and fatigue.
I was terrified, but with amazing help (from Bach’s rescue remedy, and Jan De Vries confidence and concentration drops), I was calm on the day and passed with flying colours!
Even so, I was only awarded a yearly license and this annoys me.
I’m considered too ill for a full driving license, and my Doctor agrees I cant work, but ESA have the power to say I’ll be fit for work if I don’t tick all the right boxes, and/or they trip me up?.
I’ve heard so many horror stories about ESA, including a terrible experience my cousin had.
She has a crumbling spine, is in an electric wheelchair, and is on regular doses of morphine amongst other things.
She was told she was fit to work!
She won on appeal, after 7 months of terror and abject poverty, and it turned out the nurse who took her test actually lied on the forms!
I’m still mobile, what chance have I got??
My sister also went to a medical and the Doc told her he was signing her unfit for work, but he was going to be sacked soon as he refused to meet the required amount of ‘fails’.
Is it any wonder I’m freaking out?
I suffer from severe memory issues, bladder hesitation/incontinence, sensory problems and extreme fatigue, but I look fine.
I’m on Copaxone, Modafinil, anti-depressants, blood pressure pills and am awaiting appointment for self catheterisation.
Has anyone else with similar symptoms to me ever passed ESA?

…thank you for the warning Sparkledust, I am awaiting their response to my claim. I have already been through 2 DLA tribunals (and succeeded in the end after the MS nurse/ specialist intervened at my request…), I’ll go through a third one if necessary!
Next to having SPMS myself, I have a daughter with severe learning difficulties. In spite of all this I have tried again and again to hold on to a job, but due to people’s unfamiliarity with MS, I just was not allowed to carry on (on the grounds of ‘incapacity’…).
So I’ll wait and see… :geek:

Hi

I understand your concerns and worries, although I do not need to go through the assessment as I am still just about managing with work.

I feel for the people who have to make these decisions based on the doctors report.

Like you i suffer from memory issues (I have to make notes of everything workwise). I also have bladder incontinence, fatigue and walk with a stick.

I am still on copaxone, take thyroxine, blood pressure tablets and tablets for pain & urgency.

If i was to stop work I feel that i would be found fit to work under the assessment process with the scoring system in place. Whether thats the correct thing or not I do not know as i am still at work.

I think having a good employer does make a difference.

all the best

Neil .

neil14 wrote:
Hi

I understand your concerns and worries, although I do not need to go through the assessment as I am still just about managing with work.

I feel for the people who have to make these decisions based on the doctors report.

Like you i suffer from memory issues (I have to make notes of everything workwise). I also have bladder incontinence, fatigue and walk with a stick.

I am still on copaxone, take thyroxine, blood pressure tablets and tablets for pain & urgency.

If i was to stop work I feel that i would be found fit to work under the assessment process with the scoring system in place. Whether thats the correct thing or not I do not know as i am still at work.

I think having a good employer does make a difference.

Hi Neil,
I think that’s wonderful you’re able to work and have an understanding employer.
I wish I felt able to work and didn’t need to depend on anyone for help or money, I hate it.
I KNOW I am not capable of going to work,
(even my neuro said there was no job she could think of where I would be able to work at again). yet with this assessment coming up, I feel like I’m a phoney and a liar who needs to be caught out.
I’m really scared