I was Diagnosed with PPMS in May of 1996. I have just come across the MS Forum and most if not all the postings were of Interest.The reason I searched follows a call from a relative telling me about the Jeremy Vine Radio show 5th Feb about a ‘new Drug’ for PPMS.It was not named so i googled ‘new drug for ppms’ and it came up as Amiloride. Could someone update me with it’s status re NICE appoval and how it works on PPMS. I currently take between 30 and 50 mg of Baclofen a day for poor mobility in my Left Leg - I find it a bit of hit and miss. My mobility is always the first item on the Agenda at my 6 monthly reviews with the MS Nurse.
In one of the posts (Lozzie) the Drug Idn was mentioned - what does this do for PPMS.
Many thanks to all that might reply to my very first Post.