Hello.
I’m new here and this is my first post.
I ended up here because I went to my doctor with “tingling”. It was a similar tingling to something I had in 2001 when I had been B12 deficient. Apparently I am B12 deficient again, but only just, and she said it cannot account for the symptoms I’m experiencing. She’s sent me to a neurologist, and I read in the letter “Paraesthesia” “clonus??” plus other stuff.
Well a few Google searches later, and basically I’m here.
I am to see the neurologist next week. My “symptoms” are below. Shall I mention all these to him? Seems too many and lots of them are so VAGUE! Doubt I’ll have time to go through everything, so which should I prioritise? And finally - do some of these “sound familiar”. Shall I insist on an MRI? Any other tests?
Any other advice?
Thanks so much
Sarah
I have this really annoying tingling. It began in my left heel, moved down the left side of my foot right to the toes. It has spread up my calf.
The tingling is also in both my arms, radiating down from my shoulders.
It’s very hard to describe. It is NOT pins and needles. It does not buzz. It’s more vague. It is simple incredibly irritating. I want to bang my feet and arms, in the hope it will go away. I also have a sensation which I can only describe as feeling “weak”, as if my arms and hands don’t have any strength-although they do. In all the “push me away” tests I can do all of them.
The doctor said my B12 was low (180pg/ml) (lab normal range started at 188pg/ml), she said that this was not low enough to account for symptoms.
Vit D deficiency. Mine was 25 (lab normal range 50).
I drop things.
In the beginning I just thought I was clumsy. I was never the coordinated sporty one at school! But it’s got worse. Things just slip from my hands. It’s just that bit harder to do up a zip. It’s just that little bit trickier to get coins from my purse.
When I wake up I have pins and needles sometimes. It’s in my thumb, index and middle fingers, especially on my right hand. The other day I woke up and my fingers on right hand were “locked”. There was a red dent in the middle of my palm. I spread out my fingers then pressed the dent and my fingers pulled in again.
Painful cramping in my calf muscle particularly my left, although starting on my right. It tends to happen at night and the pain wakes me up.
Exhaustion- I have a stressful life and I work hard but the exhaustion is just terrible. I can sleep all night and on waking feel I need to sleep. Mid afternoon somedays I just desperately need to sleep. There is no keeping me awake. Went shopping on Friday for an hour. The pain down my spine was unbearable. Got home and had to sleep for two hours.
Circulation and temperature-well, let’s just say I’m Goldilocks. I can’t stand it if it’s too hot, or too cold. The doctor told me I had Raynauds because my fingers go blue when get cold. Have terrible circulation. “Cold hands warm heart” was what my grandmother used to say! But can’t breath if it gets too hot.
Eyesight is fine although I have a sort of “halo” round stuff. Things sort of “glow”. Went to the optician recently and confused her a bit. She said I had astigmatisms, but in the end I did not get glasses because the corrected vision left me seeing double. With no glasses I could see one box, with one corrected eye I could see two boxes, with both eyes corrected there were three! Have had floaters since 1999.
Have terrible pain where base of neck meets top of spine, and shoulders. It’s burning and buzzing with pain!
All of this is almost an exact repeat of 2001-2002
Back in 2001 I was pregnant with our daughter. The tingling in my feet got me to the doctor who sent me to a neurologist. She examined me and gave me a load of bloods. Did NOT have any scans as I was pregnant. Only abnormal thing she discovered was B12 deficient, and she said that was normal during pregnancy. I got into the habit of taking hi-dose liquid B12 (stopped this good habit in 2009 though).
Tingling stopped but exhaustion was there. It was so bad I could not lift my arm above my head or brush my hair. I felt like a very old woman - I was 31!. As had the pins and needles sensation in my fingers I considered that maybe I had Carpal Tunnel Syndrome. Did not go to doctor, but instead went to Bowen Therapist and Nutritionist. She gave me massages, put me on a very strict diet - no caffeine, sugar, wheat, dairy. Meals every two hours for what she said was “adrenal fatigue”. Slowly I recovered.
Had various things in between - 3 miscarriages for starters, with terrible haemorrages.
And now it’s all back with a vengeance.
Any advice would be gratefully received.