My son who is now 25 has over the past 5 years suffered an illness which is now robbing him of his life. He suffers from :
Extreme fatigue - difficulty doing anything
Numbness in his arms and legs
Vision disturbances - stuttering vision
Poor memory - he cant remember things said to him 5 seconds ago
Poor concentration
The feeling of having flu and permanently drunk
Balance and co ordination problems
NO pain except occasional severe headache
His MRi and EEG has all come back clear and CFS/ ME, cushings have been ruled out
There is a family history of auto immune conditions
Grateful for your thoughts / experiences and suggestions …
hi jim
keep the gp updated on all new symptoms, he/she may re-refer your son to neurology or he could request that they do.
other options include LDN (low dose naltrexone) which has a great impact for some people.
it isn’t available on prescription, i had to see a private doctor for the first prescription but then my gp took over the prescribing.
it isn’t too expensive probably £20 a month now.
there is also HBOT (hyper barric oxygen treatment) we breathe pure oxygen through a mask in a compression chamber.
this is available at the ms therapy centre.
people with all sorts of other illnesses use it.
it is devastating to watch your grown up child go through such hell.
i truly wish you both all good things.
carole x