I’m new here, I’ve just joined and was avoiding joining anything like this until I was diagnosed but I don’t know where to turn right now so was hoping for some help.
I have symptoms very consistent with MS and have been for about 4 years now, it seems to come in waves where I get various symptoms and then they start getting better and then happens again etc.
In those 4 years I’ve been seen by GP’s and have had uncoutable blood tests been told numerous things it could be and sent away and sure enough it happens again and repeat. My symptoms have gotten to the point they’re dramatically affecting my life, I’m in pain most of the time and don’t trust my balance etc but I’ve never been able to get a doctor to refer me past them.
About 3 months back I was talking to a friend of a friend and when I told them my symptoms they told me their husband has / had very similar symptoms and was diagnosed with MS and when I looked at the symptom list I felt I was reading my last 4 years as well as giving me names for a few things I’d struggled to explain to the GP. When I next spoke to the GP I told her and she agreed it looked like my symptoms where consistent and she told me she couldn’t refer me but she would have to call a helpline to find out the referral criteria and she’s speak to me next week. This was the 3rd week in November, I’ve not heard anything from her or a referral letter etc and despite trying I can’t get an appointment with her I just keep getting told to call back for an appointment in the new year.
Is this normal? Any advice on how to move forward?