Hi, when I have a particular problem and accept that I do have to put up with it, I study to find a better way of dealing with whatever it is.
This could mean doing as you have ie ask others in the know
see if any of the bodies such as physios, OTs, continence service, MS nurse, can offer a solution or suggestion to make it easier.
I look at what might be available from suppliers of disability aids on ebay or in catalogues.
Like you, I am awaiting an appointment with an MS specialist, for yet another opinion.
Over the past 14 yrs, i`ve seen 13 neuros! Their verdicts on me range from;
t know what it is, but it wont get better…eh?
it is PPMS,
no it`s HSP,
no it`s PPMS,
no, it is HSP
it is SP…cause unknown.
Some folk think a label isn`t necessary, but it is to me. I want to know what has put me in a wheelchair, being hoisted and toileted, needing to take a cocktail of 15 tablets a day etc.
We all deserve an answer!
Good luck with your appointment, but if you like, why not ask if it can be brought forward. Or tell them you would be willing to accept an appointment at short notice, should they get a cancellation?