Just wondered if anyone had any advice for me on how to deal with my current situation. I’ve been back and forth to my GP over the courses of a few years now and I just keep getting told there is nothing wrong with me, given some pills for depression/sleeping etc. and sent away.
After spending most of my life working hard I feel I have been treated very badly now by the system, having been kicked off ESA twice and sanctioned many times by the job centre. I’m very angry about the whole situation with IDS destroying the enture welfare system as many people I know were getting signed off work and bumming around while I was working and now that I come to the system and ask to be cut a bit of slack at least for a while I am treated as though I am just trying to avoid getting a job.
I worked for many years, putting up with noise and disruption to me sleep, going in to work every day tired, burning the candle at both ends. There are lots of studies coming out about the effects of noise pollution on health and how poor sleeping can permanently damage your health. I have also turned to alcohol a lot through the years to escape, usually when I have tried to get into a healthier rhythm/exercise and yet again it’s backfired and I just end up feeling like I have a hangover all the time even though I haven’t had anything to drink for days or weeks. I often feel better when I drink because it knocks me out and I sleep better.
For about the past 6 years now I have the following recurring symptoms-
muscle fasciculation all over my body that come and go, often staying for weeks. It can affect my eyes, mouth, fingers, toes, legs, arms, buttocks
black spots appearing in my mouth, bursting and producing blood, leaving scars, slightly painful
dull headaches / post exertional malaise
depression (as a result of feeling like a don’t have eny energy to go out and exercise)
mood swings and anger as a result of it all
constant tiredness and constipation as a result of the tiredness which I attribute to my metabolism slowing down because I haven’t slept enough for days
weight gain due to poor sleeping probably
occasionally heart arrhythmia / panic attacks
pain in my left side (probably my liver)
It’s really difficult to say whether it’s all just because of my poor sleeping over the past few year because everywhere I live there is something or somebody which disrupts my sleep every night. I rarely go through the full natural cycle and wake up feeling refreshed and I always remember my dreams because I am always wakened in the middle of them.
I don’t really understand what MS is but certainly my GP who appears to be an expert on health seems to think it isn’t MS, nor ME, nor anything else (including hypochodria).
- It is worth noting perhaps that I have always had a sort of, I think you would call it a tick? All my life, every now and again, out of the blue for absolutely no reason I will suddenly feel a kind of shiver which causes me to involutarliy shake my head, kind of like a sneeze. It doesn’t happen very often and it’s never caused me any problems so I’ve never really bothered about it. I just thought I’d mention it though as maybe it’s an indication of something or some condition I have which is as yet undaignosed.
My lovely caring ATOS advisor advised me last time to push my GP for further investigation, but the last time I did this it was admist much huffing and puffing and oh there’s nothing wrong with you man. I was given some ridiculous questionaire to determine whether I was suffering from sleep apnea and sent to the sleep clinic, whereupon I was given some pills and sent away, twice.
I just wondered what people here thought I should do. One the one hand I would like to find out one way or another if this is th cause of these symptoms, but on the other hand I am worried that if I press them to test me and it comes back negative then it’ll be another waste of time and I’ll look even more like a hypochondriac than I already do. I don’t want to have MS, but at the same I sort of do because then that would explain everything, if that makes sense.
I’ve always found that cannabis helps, or at least I sleep better and wake up with more energy, I even put on lots of muscle and was in tip top shape a few years ago when I lived in Holland, but alas obtaining anything of the sort in the UK that is remotely therapeutic in any way is extremely difficult. Guess what, my GP doesn’t beleive in the medicinal calue of cannabis (no peer reviewed papers on it)
I have always, at least certainly in the last ten years tried to eat healthy, exercise regularly, work out, go for long walks but in recent years it’s been a constant battle between getting somewhere and then suffering a series of poor sleeps and ending up feeling worse than before, and then having to start again from the beginning.
Can anyone advise me on what to do, or if it sounds like maybe I have MS, or some form of MS?
p.s. about the username, I used this a few years ago when I was experience symptoms on another site which I suspected was maybe down to food allergies, and it turns out I have a mild intolerance to peanuts and wheat (who doesn’t these days) I am not sure how much of an effect this has or whether it’s related but certainly I try to cut wheat out my diet altogether and that usually reduces the muscle fasciculations. I have observed that when I eat a lot of bread and pastries and the likes the twicthes come on really bad after a few weeks and can take months to settle down sometimes.