Hi. I’m taking my head out of the sand as I need to find out if anyone has issues or assistance/advice on various DMT’s. I have RRMS. I am 64 and have had MS for 26 years. I currently inject Avonex once a week and have been doing so for 13 years. I recently moved to a new MS Consultant whom I have never met - moved 4 years ago. I appreciate there was Covid but just cannot “connect with her”. She advised me that there have been lots of advancement in DMT’s and I should try Ocrevus, Tecfidera or Kesimpta - all of which, upon reading, look very scary!! My “Consultant” will not have a face to face meeting due to lack of time … anyone use any of the above three DMT’s - any feedback would be very welcome. Bless you
I am a just few years behind you, but not many. The drug I’m on does what I need it to do, and unless my MS reared its ugly head in scan of clinical evidence and said it was time for a change, I would be hard to shift, even if something technically better came along. I would be glad to have had the offer, but would probably say no thanks, I think. If you’re doing well, I doubt whether anyone’s going to give you a hard time if you do want to stay put. On the other hand, it’s nice that 60+ MS old-timers like us are being given opportunities to benefit from our he more modern drugs if we want them. isn’t it?
Hi. I was on an injectable DMD for over 10 years and was happy with it. Then my MS Nurse said it wasn’t going to be prescribed any more so I changed to Tecfidera 3 years ago. I was worried about side effects as we all are as they sounded very drastic but I haven’t had any at all and my MS has been stable since the change over.
Hi Alison100, thank you SO much for your reply. I’ve had a great conversation today with an MS Helpline nurse who was incredibly patient with me. Really helped me vent my frustrations in never yet seeing my Consultant-she explained that it’s the MS nurses (bless them) that have have all the information I’m looking for to work alongside the internet information. I’m doing really well on Avonex but was told that medication has come on so much that it was worth checking out. Your argument is a good one two! I’ve never been on a forum and having my question replied to has really given me a boost. Thank you and I hope you keep well
You are welcome and thank you for your kind words. I wanted to make clear that I don’t think it would be a BAD idea for you to change meds - it might be a great move for you - I just don’t think you would be criticised if you did decide to stick or that you should feel obliged to switch if you don’t want to. Anyway, good luck with your decision and do please share how things go for you.