Thanks for the replies, really appreciated.
I keep getting (at least what I think are) minor relases, if such things exist. I spoke with a MS nurse the other day after I called the centre and she pretty much told me to go and see my gp if things don’t get better. She told me that all the issues I was describing were very MS like. As i’m in limbo, I guess that I am not entitled to any real specialist care?
As I have an appointment in February next year with a neuro, I was told that I was lucky that I did not have to long to wait and to bring in a symptom diary with me when I see them. I did see a neuro a couple of months back, but they hadn’t bothered to look at my scan before my appointment and the meeting was based upon citations from other doctors. My scan has been reviewed now and apparantly it does suggest demylation.
I guess that in reality, when I have my next big relapse and I head to A&E then I might get to the stage where they might do something about it.
This isn’t my idea of healthcare, this is cra p to be honest. I just hope that my next relpase does not cripple me in any way.
This sounds terrible but I am wondering if I am playing down my symptoms to be honest. Two weeks ago I was unable to get out of bed for two days due to numbness in my lower leg which prevented me from standing and suffering exteme tiredness/ dizziness. I am still struggling now, but it is not so bad at this present time.
With my last major relapse, I only got a referral for a MRI because another clinic suggested that I have one. Perhaps my pain threshold is set too high? Ive put up with ill health and these symptoms on and off for about six years now and I’m getting fed up of recieving no support whatsoever.