Hi, I’m looking for a bit of help making the decision of which DMD to go on, I know I am able to stop and change if I start and do not like one but would prefer picking one and just sticking with it if I can. I had my appointment with the MS nurse August 8 2017 to inform me about which DMD’s I can or should take. A few have been crossed out as I am not eligible for them at the minute so Lemtrada, Tysabri, Zinbryta and Gilenya have been ruled out. Leaving me with 8 choices, from these my nurse has also ruled out Betaferon, Extravia and Rebif. I now have 5 choices to pick from (Avonex, Pledridy, Copaxone, Aubagio or Tecfidera).
I am a 20 year old female and have been a vegetarian for the past 8 years meaning Tecfidera (containing beef gelatin) would be one of the last resorts if possible. As well as this, I absolutely HATE injections/blood tests which really limits my options. Given the choice (if I really really have to) I would rather have a regular injection over a blood test but would still be worried about doing/having the regular injections.
So one of the simple options would be to go for Aubagio as this is a tablet rather than injections, meaning although I would still be having 2 weekly and 2 monthly blood tests, I wouldn’t be giving myself an injection every few days or so BUT the side effect that is really putting me off Aubagio is the hair thinning/loss as I would be devastated if my hair were to fall out.
Copaxone is looking like a good choice due to no blood tests being required but that means I would be injecting myself everyday which I’m not sure that I would be able to do? I’m not too concerned about the side effects as I think I could cope with feeling sick and headaches but if I’m taking Copaxone everyday does that mean I will just have a constant headache and constant feeling sick all day/everyday, as that seems stupid to put myself through while the MS is not actually creating any unmanageable side effects at the minute so I would be making myself more sick and uncomfortable short term
This leaves Avonex and Pledridy which both need 3 monthly blood tests for the first year then 6 monthly after that. Out of the two I would slightly favour Pledridy only due to the fact it only has to be injected once a fortnight (hopefully reducing the amount of time I am affected by side effects) instead of once a week with Avonex.
If anybody has managed to get this far and is still reading, (thank you) can you give any advice on which DMD you would go for in my position or any advice on which drug you are currently on/have been on and how the side effects have affected you?
Thanks so much - S x