Just wanted to say that although I have found this forum to be a huge source of support, I have also recently been getting very upset by the tone of some of the posts, and so i think I am going to take a break for a while.
i have been having ongoing assessments over past year, and, during the whole process I have tried to be as open-minded as possible about what (or if!) i would be diagnosed with. Although I strongly suspect MS, I have also tried to be mindful of the fact that not everybody with these sorts of symptoms has MS; and that is why the assessments are necessary. So I am trying to not jump the gun, and to be as patient as possible with it all (which, as we all know, is sometimes really hard).
I am finding this more and more difficult in the light of some recent posts.
There have been a number of posts being very critical of diagnoses of conditions such as CFS / ME / FND.
Today, there was a thread in which someone said they had had their first neuro appointment, and that they thought it went really well; the neuro had taken their time, not rushed them, done physical tests, ordered MRI, been very personable and helpful, and had said although they were screening for MS they were also considering / leaning towards diagnosis of FND, and given the person details of relevant information sources about the condition. The person said in their post that they felt the appointment had gone well, and made it clear they were happy with their treatment.
The response to this? A post from someone saying “another pointless diagnosis then? what use is a diagnosis of FND? Judgemental neuro, they derserve shooting”
Now, whilst I fully understand that some neuros can be less than professional, and some can reta patients in a disrespectful, belittling manner, it doesnt sound as if this was the case here. And more importantly, the person themselves actually felt the appointment had gone well… so why are other people then jumping in and criticising a neuro who has actually behaved in a professional, couretous, and helpful way?
This is not the first time this sort of post has occured. There have been quite a few posts where people are getting very angry at being told by specialists their condition is not MS. Unfortunately, at times on this forum I get the distinct impression that their are some people who absolutely refuse to acknowledge the possibility that a diagnosis other than MS might be possible. Which, of course, is complete nonsense. Not everyone on this forum has MS. Some of us may get diagnosed with CFS/ ME /FND./ other conditions. It is completely unhelpful to be so negative about the possibilty that this might be the case. It is particularly unhelpful to people who are being diagnosed with FND / CFS etc to have people on here saying “ignore what the specialists tell you, don’t settle for anything other than MS diagnosis”. I know that sometimes mis-diagnoses can happen, but other times, it is important that people accept whatever condition they have, whether that is MS / CFS / ME /FND, whatever…
Sorry for the rant, but this has really really upset me tonight.
I am going to take a break from the forum for a while, but wanted to express my feelings before I go.
And also to wish everyone well, and say that most of the posts here have actually helped me immensely, but in order to regain some sense of calm and open-mindedness about the tests / assessments I am undergoing, I think I need to stay away from this forum and the sort of posts I have mentioned above.