Hi, just had a letter confirming diagnosis, believe I have had MS for about 25 years. Now it’s confirmed I’m a bit shellshocked
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Can’t match that - you win!
However, I was misdiagnosed for at least 9 years and by the time of confirmed diagnosis was PPMS with an EDSS already at a 6.0.
Be positive: you’ve had it for 25 years and managed it, kept it at bay, on top of it, etc. etc. Don’t give into it now that it has a label - channel your energy into research, inform yourself fully so you can have meaningful conversations with your MS Team and wider, and concentrate on your health and being the best version of yourself that you can possibly be. Armed with the label, you can focus on MS-specific behaviours to work on 
Graeme
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Thank you Graeme
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Hi Tina, I’ve had PPMS for 25 years and it took 22 to diagnose!
I was relieved to finally know what was gong on.
Hang in there Sister!
boudsx
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Hi I’m new to the site. I was diagnosed in 2020. I’ve chosen not to take medication, has anyone else chosen this route?
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In the words of the great Tina Turner - I will survive! It’s a club no-one wants to be a member of BUT we are all here and you have a ‘platform’.
We are a kind hearted group with more knowledge than any so called experts.
Take care, be safe M x
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Hi, thanks
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Thanks for reply, 22 years!!! So stressful I imagine which wouldn’t have helped!!
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Hi Frau, welcome. It would be best to start a new post of your own to get more replies.
Just click on new topic on the right hand side of the screen.
As I have had PPMS for 25 years, I take no MS drugs…just nerve pain killer…amitriptyline.
Boudsx