Hi Guys!
So yeah, as the title says I was diagnosed yesterday after a very short time. I gather from reading some of the posts here that people have had very different experiences with diagnosis.
I had Optic Neuritis in late may (Bank holiday weekend to be exact) that lasted a couple of weeks and has now returned to about 80% it’s former glory. This spurred the Opthalmologist on to do an MRI, meanwhile my GP sent my neuro refferal based on this and many other health woes I’d accumulated throughout the last year or so which are quite obvious now other symptoms. My GP has previously run more blood tests than i can count chasing the cause for reccurent UTI’s and exhaustion which i was certain would turn out to be diabetes!
My MRI came back on June 28th and my neuro was yesterday. The report from the radiologist confirmed what we thought but as you may know, you need the neuros big stamp of confirmation!
In general I feel OK. I get fatigue a lot but it just feels like this is me. I’m a joke in the office with my yawning and stretching and eyes watering from yawning so much but it’s meant in jest as my colleagues don’t really know what to say and I’m certainly not one to dwell or be negative.
My legs ache especially after climbing a flight of stairs, I have to take a second to ‘recover’ for want of a better word. They twitch at times too. But the main issue is my brain itself. I’m struggling terribly with concentration and retaining information. I just don’t seem to understand the most basic of instructions. I wanted to start a blog but simply couldn’t figure out how to do one despite a million info points and tutorials, I gave up in the end. I tried to do a simple subtraction on paper last week and just couldn’t remember how to do it. This is bar far the worst symptom, I’ve always considered myself bright and have never really struggled with work or learning like this before. The Neurologist told me this is not going to improve which is pretty heartbreaking.
I’m waiting now on my Tecfidera delivery. No idea when this will happen and apparently I get an MS nurse which is good as I have all the questions ready.
Anyway I just wanted to say hello (sorry for the life story) and any advice will be greatly received!