I was diagnosed with CIS on Saturday, following two MRIs, bloods and neurological examination. I have multiple things which have been called lesions in one report and hyper intensities on another, in three different locations in my brain, and one in/on my cervical spine. I haven’t been offered DMDs or any support. My neuro states that things look stable, and that my attack or whatever it was, occurred in October when I first had the bulk of my symptoms, numbness, weakness, dizziness and fatigue.
The neuro wants to see me every three months and I really don’t know how I feel about this. I obviously don’t want MS, but I have to admit that I prepared myself to get diagnosed as such. To me, CIS seems like a ticking time bomb, especially without any medication, although I understand that DMDs are potent and shouldn’t be taken lightly. From my own research, based on where the lesions are in my brain I’m very likely to “get” MS later, and that again makes me totally petrified. My husband doesn’t really understand, he thinks I just want it labelled, and he’s right to some degree, but I think it’s mainly the uncertainty. Does anyone feel like me?
I’ve spoken to a friend who happens to be a GP and she has suggested that I get a second opinion, but I picked my own MS specialist, who is known to be both amazing and cautious. My head is spinning, thankfully not literally anymore!! I really don’t know what to think, feel or do anymore