diagnosed november

Hi everyone

I was diagnosed with MS and then it was Christmas so never had a chance to introduce myself. I’m Emma and i’m 31.

I apologise in advance for the long story.

i had my little girl Willow in april then at the end of may decided to leave my husband, We had a family meal with both sets of parent so it was pretty stressful as we didnt want to tell them then but that night i got really bad pins and needles and cold sensation in my feet.Went to docs was put down to stress. Then when i started going to the supermarket my body legs and arms would just tense up then relax after 15 mins, again this was put down to stress. Then little weird things kept happening. Anyway ex moved out near the end of June then the last week of june i was dragging his golf clubs down the garden when everything felt funny i told my parents i didnt feel well i kept feeling like i wanted to stretch my muscles. By evening I couldnt walk hardly i had drop foot, i couldnt lift my arm up or pour juice and i kept falling, I also couldnt write. My mum said they/ll just say its stress and gave me a bottle of wine, low and behold my arm worked again lol. Anyway i eventually saw a doctor the week after she said it was just stress and put me home. fast forward 2 weeks saw a great doctor she was really concerned put me throught ot aberdeen they put me home saying stress. My doctor wasnt convinced and said lets put you on diazapam if its stress, i wasnt in a good place i hadnt slept since the attack at this point couldnt lift my baby thank god for my parents. Diazapam didnt work apart from make me feel sligtly happy, the doctor admitted me to hospital again saw the same two doctors i saw the first time when a more senior doctor just happened to be passing and asked if she could look. She phoned the neurologist then and there. Got a lumber puncture and ct scan stayed in hospital a few days and got put home to wait for mri. It was a nightmare my dad was at sea with work, my mum was looking after my baby and my 4 year old, while dealing with grandparents who were getting a new kitchen fitted and my granda has dementia. And an ex that was no where to be seen even though it had only been a few weeks, a friend asked HOW i was and the reply was we’re not together anymore so how should i know, 11 years obviously meant nothing. Fast forward a few weeks got my mri, my doc phoned the hospital the following week by lunch time i was on steroids saying it was a clinical episode they hoped a one off triggered by having a baby. But i still didnt feel great, my arm worked again and i could write and the drop foot went but my muscles we weak and I felt stiff. At the end of september my hip muscle started seizing i feel like im 100. They dont think there is spacisity but i was a champion dancer and very flexible so i can put my leg where others cant but its no where near what it was. Then in november i took my son to edinburgh/glasgow for a few days but wasnt feeling well before and during. I couldnt look at the road when my friend was driving i watched the first half of the lion king and i cant remember watching it. Then got home but kept getting pushed on as there ‘nothing’ wrong. Then got up on the sunday morning i looked really drunk i couldnt aim between doors, phoned mum who took my casualty, They transferred me to aberdeen where i was for another week. Got steriods for my eyes, my face muscles also decided not to work. By the end of day 2 i was told it was ms. My eye and face have since improved but i didnt realise when i was in hospital my left side has been affected to just pretty weak all over, Now my left leg has gone numb and my genitals, more reduced sensation than total numbness and feels like my leg is very hot but the week before xmas I had a uti and ive caught a bad cold and also started extavia injections. spoke to ms nurse yesterday she doesnt think its a relapse just ms playing games but as its a month since my previous relapse i thought it maybe was as these are new symptoms. I have noticed ive also been a fair bit stiffer. Also all my bones seem to hurt this has been going on since september my first batch of steroids. Also when i was in hospital last time my dog got diagnsed with a stage 2 cancerous tumour. Im hoping 2014 is better lol. Anyone any advice they want to give me. Sorry for the length of post emx

Hi, phew…your post took a bit of getting through!

So much has happened and I feel sorry for you. it wouldve been a help of your ex couldve helped with the children…or would you prefer not to have him in the picture?

I am glad to read you have very helpful parents,even though there is the elderly gentleman to care for, with dementia.

Your little doggy is also ill now and that is an extra burden. I have a sick 14 year old poodle and that worries us.

I hope you now have an appointment with a neurologist, plus have the number for an ms nurse.

Please can I ask you, if you wouldnt mind…try to spearate a long post into paragraphs, as this makes it easier to read…hope you are okay with me asking that hun.

luv Pollx

The paragraph thing does not work for some, I think it’s to do with compatibility on different versions of windows, so you’ll need to click tools and select compatibility view and add this site to the allowed list. That worked for me anyway. (although there are some paras in post so now confused it doesn’t take much to though!)

A lot of my initial symptoms were put down to stress which is really annoying as the more the doctor tells you that the more you believe it is.

Like you I have recently had what I thought may have been another relapse but my MS Nurse advised that it depends what they are. Sensory symptoms are likely to be an exacerbation of a previous relapse, and also a UTI can bring on symptoms but it’s not a relapse just the infection in your body causing other problems.

Hope you feel better soon and thank goodness for helpful parents, don’t quite know how I would survive sometimes without mine being there for childcare.

Take care

Ruth

Hello em

Glad to see you writing on the forum…hope you got my reply to your pm.

I think I’ve got the gist of what you’ve written…I struggle to take in a lot of info in one go.

Sorry about your marriage break up but your parents sound lovely and supportive. Its very sad too about your dog…I love having dogs but hate the saying goodbye part.

Would a physio and ot assessment be of help em? or have you already had one. Get as much support as you can from the professionals.

Take care

Hi I just wanted to say hello. I was diagnosed early December so it’s all new to me. Lorna xx

Hi thanks for your comments. I’ve been diagnosed with rrms. I think that’s my third relapse at Xmas this time both arms legs and co muscles are affected is this normal. I feel so weak all over x

Hello Em, I’m still going through the diagnostic process but just felt the need to send you a supportive {hug}. Keep bringing your focus back to all the good things in your life, it will help you get through all this :heart: