Demyelination of optic nerve

New diagnosis and before diagnosis
1

Hi

I was wondering if anyone else had a similar experience. I am due to see an opthamlomogist in 2 weeks after being referred by my optician becuase at a routine eye test there was evidence of demyelination of the optic nerve in my left eye. I cannot say that I have had any major symptoms from this but do recall an incident about 12 months ago where my eyesight was very blurred with and without my contacts/glasses. I am aware that this may be the start of a lot of further investigation but was wondering if anyone else has experienced this or if anyone has any information/advice on this. The possiblilty that this could mean MS does not scare me as I am aware that there are many things to look in to first but am just trying to inform myself prior to going and know whether there should be things that I need to ask when I see the opthalmologist.

Thank you in advance

2

Hello and welcome :slight_smile:

I have never had optic neuritis, but your story is not uncommon.

Optic neuritis (ON) is a common first sign of MS, but as you already seem to know, there are other causes and even when everything else has been ruled out, it’s only about 50% of people who go on to develop MS so there’s a good chance that this is as far as things will go for you.

I can’t think of anything that you need to tell the ophthalmologist other than be able to go through your history. You could ask about an MRI scan if it’s not being mentioned - it would be useful to have a baseline, in case you develop other symptoms in the future.

In the meantime, it wouldn’t hurt to see your GP and ask for some blood tests, especially vitamin B12, a deficiency in which can cause ON.

Karen x