Hello everyone! I know I haven’t been on in ages but life has been a bit harder than usual recently. So my DBS journey is continuing at what can only be described as my walking speed! Real slow
I had a new MR scan in October in Southampton more detailed my original was done privately so NHS claim they cannot compare the current picture with original? My follow up came in January WOW my brain is covered in scars!! Although it was a good thing for hubby to see I actually have one!!
The main one which seems to be causing all the trouble is on the right side near the top and the size of my ring finger, he says not the worst he had ever seen but pretty bad. I am therefore a prime candidate for DBS great… Southampton cannot do surgery as PCT refuse to fund as not a normal MS symptom/treatment!!
I have now been refered to John Radcliffe Oxford to have the implantation of the electrodes done there, then all the programming and the “controller” will be implemented in Southampton!! Very long winded and quite exhausting to be honest but hopefully when this is done I can stop hitting myself quite so often and get back to two handed typing!!!
Love Jules xx