Well the last 2 weeks have been eventful ones – I had another brain MRI and a cervical one thrown in
I had a special scan of my Optic Nerve
I saw the endocrinologist for my test results – everything was normal so things like Cushings etc are ruled out. The Addisons test was inconclusive so I have to go in for a day for more advanced testing – he is also arranging a specialist specific scan of the pituitary gland to see why it’s enlarged.
All moving forward slowy but surely eh! – then yesterday I saw the ophthalmologist for my Optic Nerve scan results – and what another performance it was!!!
I went in and the nurse did all the usual eye tests – I sat down and the doc asked me all the usual questions and then did the usual eye examination with the usual drops
Then she sat back and said
" Hmmmm - There is something showing behind your eyes so I’m sending you for an Optic Nerve Scan”
I said “But I’ve just had one - that’s why I’m here isn’t it?? - for my scan results???”
She looked at me stupid - then looked a bit further through my notes and eventually found everything including the scan results!!!
They had me down as a brand new flippin patient!!!
So she looked at the results and said
“Ok - there is damage showing here - I’m giving you a prescription for drops – you will need to take them for the rest of your life - there will be side effects but if they are intolerable you can phone the nurse”
I asked what they are for and she said
“the Glaucoma! – It’s in both eyes not just the one – you have vision loss – that’s irreversible I’m afraid - but hopefully we can stop any further progression – see you in 3 months”!!!
Well I wasn’t having that! I bombarded her with questions – especially about the other doc querying whether I’d had Optic Neuritis in the past – she said that the damage showing on my optic nerve could have been caused by ON but who knows now and totally dismissed it! Even though I explained that it is important as they are investigating MS - but she wasn’t interested!
The other eye doc had assured me that my vision loss could not be due to the glaucoma as it’s not advanced enough – now she is saying different!!
It’s ALL too flippin flimsy for me to be honest!!! This limboland journey is chaotic and inconsistent to say the least!!! What with letters missing, notes missing, one doc saying one thing then another saying something else – even the same doc saying one thing then when you see them again they say the total opposite!!
Basically I’m left all the time with the nagging doubt that they are missing something by being so disorganised and not looking at notes properly!!!