Hi I spent 2 weeks in hospital and I have been discharged from hospital in the past 2 days being diagnosed with remitting relapsing Multiple scarolsis I done a 3 day steroid drip and then they discharged me. I didnt have chance to speak to anyone from the MS team and I have woken up today feeling the worst I have since my attack started but I am at home and I am unsure weather it is just the steroids finding their way out of my system causing flare ups any advice would be really appreciated thank you as I don’t know anything about what is going on thank you again
Hi, what a scary time for you. I am sure a lot of people will recognise a lot of what you have been going through. You would hope if you have been diagnosed with remitting relapsing MS someone would get in touch with you from the MS teams who can help. The MS nurses are a fantastic resource. It’s very common to hear the phrase everyone’s MS is different, this is true.
The Steroid drip would have been give to speed up your recovery. The dose is usually quite high and can have an affect and should settle but don’t put up with feeling rubbish for too long. Remember there are people who an help especially if you have just been discharged from hospital.
Hopefully things will settle down and you will have time to read around your diagnosis. I am sure right now its a shock and you need to give your self time to take it all in.
Thank you James for your calming words it’s been shocking to the system as I am used to moving at 100 miles per hour so this is has knocked me back massive. I have woken up today feeling better my legs aren’t as heavy I’m not as wobbly moving my waist isn’t as tight and I have more movement in my hands but still rather tight.
Do the MS nurses take a while to contact you after you have been discharged or with it before mg my first time will they be quicker to make my first appointment.
Any advice is really appreciated well I try and get my head round what is going on.
And again thank you so much for the reply James truly appreciate it alot.
Hi, i am glad things are a little better this morning. It can take a while to get everything going and it can depend on where you live. Once you break into the system you can be under a consultant, MS nurse and physio .
I was initially diagnosed when i was 23 I am now 54 and just got back from the gym. I say this to say life doesnt stop. Things can get harder as you get older. Keep a positive attitude it can go a long way
Thank you so much James and I truly do appreciate all the advice and help mate I am currently trying to sort out help as not working is taking it’s told financially on my family.
It is really good to hear that you can still do normal life and it doesn’t stop you doing what you want Todo.
That is music to my ears mate and I hope you are ok mate thank you again I really do for all your advice mate.
I’m getting sorted of used to the way it is right now I just need to get my first appointment to speak to the MS team now