I’m just looking for some advice and I suppose to put my experience down in writing.
I do not have an MS diagnosis but I recently went private to see a neurologist. Had the examine (could touch my nose, felt the vibrations, everything as expected) but have been referred for a brain and cervical mri.
my symptoms
5 weeks ago I had extreme heaviness in both legs when walking (like I was walking through cement), I then experienced a really bad episode of cramp in one foot which lasted about 20 minutes. The next day I had pins and needles in both arms which lasted for 24 hours. I went to my GP who referred me to neurology.
Since then the pins and needles in my arms come and go and the cramp happens randomly in my foot but not bad like the first time.
About 2 years ago I was experiencing dizziness when I stood up, tachycardia and low blood pressure. I saw a cardiologist and had an echo and my heart was fine.
6 months ago I experienced what I think was a visual migraine which last only 15 minutes and I couldn’t see for those 15 minutes. Eye test showed that my eyes were fine. I do however have a daily twitch in my left eye (it vibrates).
I don’t know why I am writing this or what I want but I’m wondering, does anyone think this could be MS?
My GP did take my bloods and I am deficient in Vit D which might be mimicking the symptoms of MS. I have been prescribed a high dose for 7 weeks.
I don’t want to make you feels silly or that I’m. It taking you seriously but could a lot of those. Symptoms be attributed to dehydration? Cramp is a big thing to be caused from dehydration .
It’s completely understandable to feel anxious with symptoms like these, especially while waiting for answers.
What you’ve described—heaviness in the legs, pins and needles, cramping, and visual disturbance—can be seen in neurological conditions like Multiple Sclerosis, but they are not specific to MS. There are several other, more common and often reversible causes.
One important point is your Vitamin D deficiency. This can contribute to muscle weakness, cramps, and sometimes altered sensations. Similarly, things like anxiety, migraine (including visual migraine), or even benign nerve irritation can cause symptoms like tingling and eye twitching.
The fact that your neurological examination was normal is reassuring. The MRI of the brain and cervical spine is the right next step—it helps rule out MS and other structural causes more definitively.
At this stage, it would be premature to assume MS. Many people with similar symptoms end up having non-progressive or treatable causes.
For now, the best course is:
Complete the vitamin D treatment
Wait for the MRI results
Keep a simple symptom diary (timing, duration, triggers)
If anything worsens significantly (e.g., persistent weakness, vision loss lasting longer, or coordination issues), seek prompt review.
You’ve done the right things so far—try not to jump to worst-case conclusions while the investigations are ongoing.