EJC
Apologise for the closure of your thread.
I posted about the cost cutting with the best intentions but everything I post here is taken as offensive, despite it being factual relevant and part of the discussion.
Regards
Alan.
PLEASE READ THE RULES
· purposeful hijacking of threads in order to pursue an accusatory or antagonistic agenda.
· posts that promote false claims about MS or the MS Society or promote products/services related to treatment of MS.
Dave
I refuse to accept your apology as in general they were not relevant the discussions, you went off into a rant about DMD’s, and the research shows they do actually work depending on what studies you read and you must be reading the wrong ones . I am an ex REBIF and COPAXONE user, when my diagnosis was changed from RRMS to SPMS I read the research and discovered that in SPMS, Copaxone would do very little for my deteriorating condition so I made the decision to stop that particular treatment to save the PCT money.
I was diagnosed in 2004 and have been on the drugs treadmill ever since and my post was to try and help others by pre warning these sort of letters are out there not scaremonger as this seems to be your tactic. You start with a thread going back to 2002 at the start of the risk sharing programme that helped to get rid of the postcode drugs lottery, so your point is “?”
Quotes from first post
EJC
You have found the product which provides you relief, who am I to suggest that is no good for you? I’m not, for you it clearly works.
OK
EJC
What will you do if it is found that the drug you currently use is no longer offered as it’s simply no longer cost effective? Does that potential not concern you enough to ask pertinent questions about it?
Yes I will ask questions and if the drug is no longer offered I will fight long and hard to get its continued use funded by the NHS.
My Campain for SATIVEX in now in its second year and I will continue to fight.
The article refers to “Recent Research” which seems to be the basis for the conclusions drawn by the MS Society and NICE. What is this “Recent Research”, I’d like to read it?
What article are “you” refering to. On second thoughts don’t ansewr that.
What will you do if your drug of choice is no longer made available by NICE for treatment under the NHS? Will you continue with it privately paying from your own pocket?
To be honest this is none of your or anyone else’s business.
I note you have been a member of the forum for only just over one week so a couple of questions for you.
Why did you join the forum, was it just to get reactions from the MODS, by the way Thanks To Liz for closing the thread. This was my first post for a very long time, the reason I stopped was people like EJC who just want to voice their own views and shout everyone else down.
You seem to be an intelligent person so why not try to be positive, the reason for the forum is to discuss NOT shout down.
AS A RESULT THIS MAY WELL BE MY LAST POST ON THE FORUM SO I DO NOT MIND HAVING MY SAY ABOUT “EJC” AKA Alan but no other info on his profile.
Alan
Get a life is my message to you and find another forum to abuse.
Don’t think this will stay up for long but I had to have “My say”
Dave