Can anyone help, I had, what I thought was a complete 100% cast iron RRMS diagnosis, I am on course for further appointments to sort out drug treatment etc, then I get a letter to go back to neurology to see my consultant for, as the letter stated, a routine consultation, bear in mind I was there not three weeks ago. The upshot of my rambling is that he seems to think that I do not have MS, despite my scan results and other symptoms, he mentioned about my arms not swinging when I walk, the feeling of my legs being ‘encased’ and the problems I have remembering certain things ( surnames of people I have known for years being one) he mentioned Parkinson’s, of which there is a history in my family, my grandmother had two sisters with it, but at 36 I am surely too young for this? I still get every Ms symptom you can imagine, are they being over cautious? Is there a link between the two conditions? And what’s the swinging arms stuff about? Sorry for all the questions, I was getting used to MS being here and now I don’t know what to think and I totally don’t understand any of it, I don’t even know what Parkinson’s really is, the Internet describes it like MS! Pen xx
I would guess that he has had a review with other neurologists/specialists and they have challenged his decision. It doesn’t mean that it isn’t MS that you have, just that some things might be inconsistent. Tbh, while this is a horrible shock, it is definitely best to make sure that the diagnosis is right.
The lack of arm swinging is a sign of Parkinson’s, but I don’t know how robust it is, i.e. whether it occurs in other conditions or not.
There are many symptoms shared by MS and Parkinson’s, e.g. tremor, fatigue, balance, cognitive problems, bladder & bowel,…
The Michael J Fox website on Parkinson’s is brilliant - why not have a look on there and see what you think?
Btw, people with Parkinson’s Disease do not have MS-typical lesions. If you do, then it’s more likely to be MS.
I hope you get some answers very soon.