Hi I’m just hoping for some information, I will try to cut a long story short, I have been suffering with symptons that link to m s, my Neuro was convinced I had m s, but after all tests came back clear m r I, v e p, l p, he sent me to a movement disorder clinic, the Neuro done his examination and said I don’t have parkinsons but I’m showing some symptons which may develops into parkinsons in the future, which is exactly what my other Neuro said sbout m s, that although the tests are clear I’m showing clear signs of it and that some people wait years for it to actually show in test results,
I’m so frustrated by it all first it’s this then it’s not, then it could be that then it’s not, it’s driving me crazy, the movement disorder Neuro says it’s a blockage in my brain that sends the Signals to my body to tell it what to do and because it’s blocked my body won’t do what I’m telling it, I’ve also been registered partially sighted as a part of all my symptons.
The Neuro is now going to send me to a physiotherapist and also have physio because he said I’m sitting in front of him and moving like a 80 year old women ( I’m 49), I have to also have more appointments with him.
I really didn’t understand what this physiotherapist was all about so I looked it up, and I wish I hadn’t cos now I think he thinks I’m making this all up threads, that’s terrible I’m no way making this up and no way it’s all in my head, I just can’t believe it I really can’t it’s so heart breaking that your doctor’s are not believing you .well that’s how it’s made me feel since reading up about it,
It’s crazy it really is, how do I make up my vision problems when I’ve been registered partially slighted, surely I can’t imagine that can I, and having to have your daughter care for you, having to have sensory people from the sensory department com and assess your home and adapt it, and also to have a occupational therapist come and adapt your home, and may be have to move because my home can not be adapted to my needs, surely I’ve not imagined all that as well have I.
Oh sorry I got carried away there I do apologise, but I also see a doctor in the pain clinic who has said I have damage to my central nervous system. When I asked the Neuro if that was causing all ny symptons he said most probably but the nervous system is very difficult to put a stamp on actually what is wrong until it shows it’s head in test results until then we have to do something about your mobility.
So I don’t understand what a physcotherapist can actually do to help I’m confused there, I hope I’m not going crazy and imagining all this surely not !!!’ Can anyone help as to why I’m being sent here or how they can actually help me,
Thank you so sorry for the drawn out message I just do not understand why I have to go to see this person.
Thanks again for taking the time to read this .
New user xx