Hey everyone! Not sure if this is allowed here but I just did not know where to post or to go. So I am 21. This past year (2017) has been scary as hell and a crazy ride. I have seen doctor after doctor and each likes to give me a different diagnosis. My symptoms started as vertigo and lightheadedness so I was told it was just anxiety and panic. Then CFS. And then a vestibular disorder causing dizziness. Never was a big anxious person before all of this.
Now, as the year has passed, I have eye problems with permanent floaters, tinnitus, balance problems, dizziness, brain fog, depersonalization, leg and arm “growing pain” feelings and numb feelings deep in my muscles (nothing crazy or alarming), episodes of slurry speech and confusion, memory problems like I’m 70, breathing issues and chest pains (like someone is sitting on my chest), and head pressure and pain where my symptoms will couple and make my seemingly harmless headache be from hell. I have food triggers and sensitivity to light and sounds so “going out” anymore is pretty nonexistent. Oh, and not sure if this matters but anytime I am in a hot room or taking a hot shower, or any heated area I get so weird and dazed. My vision goes funky and I get on a rage moment to escape that situation immediately; all my symptoms ten fold.
I just feel detached and weird all the time. I use a cane to get around. I’ve accepted a lot of it but now I just want tested for this but my neurologist is so sure this is all a “migraine” variant. Which I think is a blanket term for something else going on. I just have progressively been getting worse month after month and the “migraine” medicine hasn’t done crap for me. I have family history of MS, and just want an explanation for all of this weird stuff happening to me so suddenly and out of the blue. It has literally changed my whole life around and made me live by my symptoms and how I’m feeling on “x” day.
If I may add, I’ve had blood tests to rule out other things and no seizures, no other conditions so far other than Vestibular, MAYBE. No lumbar puncture; no brain MRI recently to see if lesions are developed. Last time I had MRI was July of 2017. Saw one lesion but said it was “migraine”.
Just wondering if this even sounds like MS or if I’m nuts like my neuro wants me to think. lol thank you for reading