Hey everyone, Im Nicola and I’ve just been diagnosed with MS. I had the brain, neck and spine scan. I could see all the lesions on my brain and spine ( looked like little white worms). I need to have another MRI with contrast and a lumbar spine. I’m trying to stay strong. He said it could’ve been there for years! I am prone to being clumsy, my legs buckling but never thought it could be MS. I can no longer go on runs, walk the dog and even get scared walking to school to pick my daughter up.
How’s everyone when they find out there results and what’s the next step?
I am sorry about your dx.
How was I when it happened to me? Well, completely in bits, frankly. I think that’s pretty normal, as is feeling very negative about life and the future. But life goes on and there’s stuff to be done and bills to pay and the worst of the shock fades and things get back to something that feels surprisingly like normal. But those early days are not fun at all, and I do feel for you, remembering all too well what that feels like even though it was a long time ago.
Awww thank you very much.
I’m still in shock to be honest. It’s scary, knowing I could fall at any point. I’m trying to stay positive and not stress. Maybe, when I have my next MRI, Contrast and Lumbar Puncture they’ll be able to give me treatment,
I hope so too.
Sorry to hear of your diagnosis. I was diagnosed in 2018. It was a big shock. All I can say to you is, be kind to yourself. If you have RRMS, the relapse will pass and you may be able to do more things as you recover. Patience is key, it is difficult though. It is very normal to be scared and worried at this time. I remember thinking I’d need to adapt my home for a wheelchair and give up work. However, 4 years on I am still working full time (with some adjustments like working at home) and haven’t had a relapse since starting on DMTs. If someone had told me in 2018 that would be the case, I’d have snapped their hand off. We cannot predict the future, and I’d be lying if I said life isn’t more difficult now, but you will learn to adjust with time.
Take all the help that is offered, listen to your body and be kind to yourself.
Thank you very much. It, was a complete shock to me. Ive, always been an active person. I’m hoping i can still do the things like i used to do, like walking, running. I’ve, not be diagnosed as to what stage I’m at that yet. Hopefully, things might return to normal, I hope .