hi x first of sorry if i’m in the wrong place, i don’t use forums like this very often and i couldn’t find a fitting topic to use
i’m nearing my 40s and i would say i have a good understanding of ms, i was diagnosed in my teens and my doctors have been so helpful ! one thing has always bothered me though
i have secondary progressive and my mum has relapsing remitting, so we are very worried about my daughter. what are her chances of developing it? i ve never had room to ask about this when i meet with professionals and as she gets older (she’s nearing 17) she develops more and more odd issues like vertigo, dizziness, random pins and needles, et c
we re getting her glasses soon so it might just be her eyes but i cant stop worrying ! x x what do you guys think? going to talk to our GP about it when we next see him but i just want some reassurance
When I told my GP that both my mother and grandmother had bowel cancer he arranged to have me checked out in quick time. All the tests came back clear but I’ll be monitored at regular periods for the rest of my life. I’m 60.
I would hope that any doctor worth his title would jump at the chance of getting any condition under control before it becomes an issue. Just make sure that you have got all the facts so you’re ready for all the questions.
Best wishes to you and your daughter.
And please come back if you need to. And I hope you don’t.
There is some evidence that a lack of vitamin d3 contributes to developing MS and it might be a good idea to get her levels checked. It’s a beneficial vitamin anyway, so unlikely to do any harm.
You ae clearly doing the right thing by raising the issue with your GP and hope the news is good.
I agree with everyone else. Hopefully the news for your daughter will be good, but it’s the right thing to have it checked out. Don’t forget though that our minds do awful things to us. She could be experiencing nerve problems out of a perceived belief (even if it’s unconcious) that she’s almost certain to develop MS because of the family history. Here’s a link to the stairs tics that show risk factors dependent on family members. Risk of developing MS | MS Trust
I’m sure we’ll all be keeping fingers crossed that she doesn’t have it now (or of course develop it as she gets older!) but whatever the outcome, feel free to return here for sympathy / fellow feeling / help / etcetera.
Whammel is Correct - as usual. Start your daughter on VitD3 - You can get an easy test via CityAssays Lab B/ham - its a postal service using a pin-prick method. Hopefully, her levels will be over 100nmols. Vitamin B12 is also very important. You only have to google Vitamin B12 deficiency MS - and Vitamin D3 deficiency MS for more information.
But you probably already know this seeing as you and your mother have MS.
l have a daughter too - and it has always been a worry to me that she will also develop MS. She went down to Cornwall to a music festival this weekend - and it was very sunny - so at least she got some rays.
First time user here so apologies if I get this all wrong. I’ve got secondary progressive and my children getting M.S has always been in the back of my mind. My 11year old son has been having a terrible time at school which started with bullying. Him and I have very similar natures and he used to say he wished he had M.S so he would know exactly what its like to be me-with M.S… Now as he is suffering from anxiety disorder he has been desperate to act in films in the USA. He attends Stagecoach theatre School but now he spends hours looking at auditions online. He doesn’t have any friends and after a long talk he has confided that he is terrified of getting M.S or cancer. He won’t go on school trip to swimming pool and ice rink as he says terrified that kids kill him there. He wants to act as he says he doesn’t want to die without leaving a legacy. Reassurances seem to offer little release. He has known about my M.S all his life and I have been pretty chilled about having it. Telling my kids that I think I’m a better person since I got M.S. I don’t have many friends and don’t know if this is making him connect to my life. I feel so terribly guilty and have no idea how to help this. I feel that I’m just hanging on to my own mental health with all of this.
Sorry if this has come across as a rant. I have extended family who have M.S and my husbands adoptive family have M.S… I was a professional dancer before diagnosis and was as fit and healthy as you can ever get. I feel therefore it’s out of our hands wither you get M.S or not and so the most important thing is to show that life goes on with it. I firmly believe that there will be a M.S cure in our children’s generation. So as much as no-one wants their child to be ill at least there’s hope for successful treatment. I’m with you girlfriend, if we share our worries then they take less of a toll. Any ideas out there as to how to help my son would be gratefully received.
Sorry if this didn’t make much sense, poor cognition really sucks.