Going back in June I was told that I had CIS following an episode in which seen me losing feeling in my left side of my face and arm which lasted for around 30 plus days. The MRI scan showed that I had mutliple lesions in my brain and spinal cord which are an indication of MS.
My neurologist was concerned that due to the number of lesions found that I was at a higher risk of going on to develop MS. The news hit me for six and I have somewhat struggled to get my head around it all.
My MS nurse offered me a follow up MRI with contrast which I had a few weeks ago. I have received the results and it is good news as there have been no further lesions found in a 6 month period.
What I am now struggling to understand is that no-one wants to see me and was told that no further action will be taken unless I experience new symptoms.
Is this normal? If I am being told that I am at high risk of developing MS would they not look to monitor this?
I am not aware of what symptoms I should be looking for so would not know.
I am sorry if I sound ungrateful that it is good news. I truly am but still also feel a bit in limbo. I want to make sure that I can do everything possible to remain healthy.
Any advice is welcomed.