Hi all,
I had a first appointment with ms specialist neuro last week. He said my brain scan had multiple ms like lesions, so he thinks I have had it a while .(I am 34) but as this is my first episode of symptoms, he is calling it CIS for now. As expected, he couldn’t tell me how much more I am likely to improve, if at all, but did say it was encouraging that I have had some improvement since symptoms began. I am now approaching 11 weeks of symptoms and getting concerned that this is permanent. I know nobody can say, but can anyone share their experience?
Also, I went swimming last night, in a nice warm hotel pool (I am searching for a pool warm enough to take my 5month old son to) it was lovely, but when I got out I felt awful, similar to I did after having a bath when symptoms first started. I understand this is because I got hot, and it won’t make the condition actually worse, this morning I felt back to my “normal”. I just wondered if being in a warm pool will get easier with time, ie if I just keep doing it my tolerance will improve? I want to be able to exercise, and I want to be able to swim with my son, so this is getting me a bit depressed. Walking four miles last week (.two miles each way to a play group with a two hour rest whilst there) wore me out too. I should have found that really easy. If I knew it was temporary I’d be ok with it, but thinking this is potentially it for me is getting me down a bit. I know there are worse things and I am trying to be pragmatic about it. Any shared experience appreciated!