Can optic neuritis pain keep coming back?

Hi Sharon

You are still their great mum and i bet they think the world of you but you should be proud of what youve acheived , 4 great kids all on your own is a testament to your strength and character and they though saddened wouldnt help if they didnt love you for who you are , ive learnt kids ( we have 3) are very resilient and in your scenario they obviously think the world of you and just because your ill and have this horribleness of MS you are still their great mum and you should hold your head high and try think of the now and not the future as the future scares us all i am sure , i know it scares me. , as for the counsilling (sorry spelling) thats great i find it great as i can give horrible details and im not upsetting my family or parents although my dad is great and understanding as he was a fireman and has his own memories and is my rock and hero.

I try everyday to focus on what CAN i do today not on what i cant , i dont know if this helps or if im not dealing with it but it works for me and if i have a bad day like today i just say to myself okay time to sit and relax and rebuild , its easier for me as i have my wife and parents , i hope you have someone to turn to on these days , a friend family member etc.

Keep your chin and head up youve got wonderful kids of your own doing and that is a reason to be proud of yourself

sheep x

Thank you Sheep, what a boost your message gave me I am very proud of myself and my kids and I have a great sense of achievement in being a good mum, I just have a wobble sometimes and worry that my illness is taking its toll on all of us! I am so glad that you have such a good support in your family and from your counselling, I have fantastic parents who are always here for me and I am lucky to have friends who are more like family to me and I dont know where I would be without them!

I take my days one at a time too and each one I get through feels like a mini victory, some days are harder than others as you know but today I have spent with my crazy friend Sheena who always cheers me up and my best friend Florence is visiting us for the weekend with my “nephew” so that has given me something to look forward to, although I know that I will be exhausted and run down afterwards it will be so worth it!

I hope you are doing well, take care and thanks again for your messages I really do appreciate your kind words,

Sharon x

Hi Sharon thats great news that you had a good day , yep we all pay the price but its definately worth it and yep thats how i go day by day hour by hour , its brilliant you have good friends and family and parents that can help you when you need it.

Im glad it gave you a boost as we all need a boost from time to time as like you we have wobbly days both psyhically and mentally , on those days my wife tends to leave me be as i can be either quiet or teasey as if i drop something 3 or 4 times it usually results in the item having an excuse not to work again but i am coping better with counsilling as most of anger they think is PTSD related and with the typical MS frustration it combines to make the slightest thing pop but 5 mins later my wife and i are normally laughing as she knows how to calm me , id be lost without her , i have friends but unfrotunately most of them are at sea or on the lifeboat and being a small atypical fishing village i get very very few visitors but that suits me as when i go down the harbour i get hellos how are yous from so many people that i find it hard to enjoy being down there which is why i like being able to get just a few miles from here where no one knows me and i can just be quiet and enjoy the peace , i dont know if its the MS or PTSD but on days even a computer running in the corner or the heating in the house seem so loud and overwhelming.

Anyhoos have a great day today and i hope you are either having fun or relaxing all the best

sheep x