Hi, just wondering if once you have had a “proper” bout of optic neuritis the soreness when moving eyes can come back? My bout which start at the end of 2013 is better now, but I do get days (like today) when it feels all tender again. This morning for instance I have woken with it feeling very sore… Everything you read says the pain goes away quickly, so of course wondering if there is a different cause? Thanks Leah 
Hi
I had Optic Neuritis in Oct/Nov last year just before my dx. I still have days when moving my left eye can be painful and I worry its coming back. I assume it can flare up slightly due to the nature of what it is. I also wrote on another post, that since having it, I have random flashes of white light at times in my left eye.
All part of the joys eh!? :o)
L x
Hi my attack was on the 29th Jan 2013 the only reason i remember the date is after months of aching i awoke totally blind tried to get help and felll down the stairs dislocating my right ankle (was some day i can tell you) i drove myself to hospital using just my left foot and they found i had ON and refered me but i was happy as i got home in time to see England play Scotland in the rugby
now 13months on and counting im all but blind in the left eye just a white haze , but i do get days of pain in both eyes or 1 or other and headaches something i never suffered with before , my advice if it hurts make an apt and get it checked out , i wish i had back in Nov 2012 i just kept thinking its just tiredness or straining.
hope it eases for you soon
regards sheep
I have had 4 bouts of optic neuritis the first when I was 18 and I’m 33 now.
I often get a pain behind my eye, it normally goes away quickly after a few minutes but some days it comes and goes. Those days are normally ones where I have over done it badly!
I’m having a relapse at the moment and so far don’t think I have got optic neuritis this time but I am having the pain on and off.
X
I have had 4 bouts of optic neuritis the first when I was 18 and I’m 33 now.
I often get a pain behind my eye, it normally goes away quickly after a few minutes but some days it comes and goes. Those days are normally ones where I have over done it badly!
I’m having a relapse at the moment and so far don’t think I have got optic neuritis this time but I am having the pain on and off.
X
Optic Neuritis was my first symptom 9 years ago and it flares up from time to time. If I get hot or stressed then the ON reappears til I cool down and de-stress. I also get the pain behind the eye when I move it.
Shazzie xx
Hi everyone, thanks for your replies. So I guess it is ON pain then 
I am not dxed with MS presumably just CIS with ON, but obviously hoping there has been some terrible mistake! The fact I get the pain every now and again was feeding into that belief, along with the fact that I had no dramatic vision loss, just a bit of blurriness and reds looking a bit paler - the pain was the main issue that got me sent to hospital.
Sheep - sounds awful, but you are brave driving with one foot! and im please you got back in time for the rugby
Thanks for your help…
Leah
PS I have just realised something - nobody told me anything about driving issues, but wonder if I should report to DVLA even though I have had no vision loss (and have another, perfectly good, eye)?
Thanks
Leah
Hi, I had my first bout of ON 12 yrs ago and ended up blind in my right eye for days! Rather scary when I didnt have a clue about the MS at that point. Even now I still have a slight hazy spot in middle of eye and thats the 1 that often aches when im tired or stressed. Really annoying.
Due to the nature of it yes I think you do have to report it to dvla or say you have an accident and it come out later you wouldnt be covered insurance wise unless you told your provider and dvla do state you have to tell them of any medical conditions.
Better to cover your own back really I think.
Good luck and take care
Jemma x
I have Optic Neuritis which started in November and I have lost the sight in my left eye and my right eye is blurry with a small scotoma in the bottom left of my eye. My left eye is painful at times especially when I am overtired or too hot and there has been no improvement in my vision in the past 3 months. Does anyone know if this is likely to improve over time? I am not a googler of symptoms as I made that mistake with my cancer 7 years ago and scared myself silly with worst case scenarios so I just dont do it any more and my knowledge is quite limited.
Hi leah yep was fun lol i had to tell DVLA & insurance , i had and still have visual field tests , dvla i did over the phone & insurance over the phone with no increase in premium , don’t be alarmed they class it as “lost eye” i told them i would let them know if i ever find it
Hi Shar
Not to scare you im on month 13 and still not able to see from left eye but this is different for everyone i hope it eases asap for you
respect sheep x
Thanks Sheep, I am hopeful but trying to prepare myself for it never coming back! Have you managed to adapt to it or is it still weird? x Sharon x
Hi Sharon
Yep you do adjust , took me while putting cupc down and letting go when they are still 6 inches or so from the table meaning coffee everywhere , ive always rode bikes and riding my Harley was like learning to ride all over again and took me 3 months before i learnt to trust what my right eye was telling me , car wise i struggle with tight gaps and reversing ive hit a parked car which my insurance took care of and reversed into a barrier and being an ex-boyracer and motorsports driver this was real hard to understand why but ive since practiced in and out of the garage and its due to i cannot tell how close i am when reversing no prespective vision so i dont drive my car at all , on the bike its easy as if it looks tight it is tight i can tell with 1 eye and dont have to keep looking side to side , typing was a nightmare as was playing my guitar but ive adapted and you will , ive had 13 nearly 14 months to get used to it , it does come but it takes time.
I struggle to do anything without my eye patch on my insurance is valid only as long as i wear the patch , i tend to wear it alot as it makes life for me much easier , though i understand why alot of folks would hate it , im too weather beaten and old to care about my image or street cred lol and my wife is used to it and my friends call me snake off the Kurt Russell film so kinda makes it easier to cope with.
Hope you adjust soon and get some relief from it all regards sheep x
Hi Sheep
Thanks for your reply, its reassuring to know that you have got used to it and I will too At the minute, I just feel so weird! Simple things like finding the kerb with my foot and finding the bottom step are beyond me and ive had that bother with setting things down, ive spilled things and entirely missed the table with a cereal bowl yesterday morning it landed on the floor and smashed. Im off work as what little sight I do have is only around 1/6 of normal vision and as I work in benefits and revenue I am dealing with sensitive information and if I make a mistake not only can people lose out on benefits or be paid too much but if that happens I can also be prosecuted so obviously my employers cant clear me to go back to work, its so frustrating. It must be hard not being able to drive like you did before, its very true that you dont knopw what youve got til you dont have it any more eh?
The patch sounds good, I havent used one mainly as my opthamologist at the hospital told me I had to exercise the eye and not to use one but im aware that covering it or even closing it helps me to see better from the right one so I may get myself a patch to try
Take care
Sharon x
Hi Sharon
yep unfortunately i think we all take or took alot for granted before we get hit with what is an emotional lump of 2x2 and its always the way the things we once did without thinking become the hardest , i think im lucky as although i have it , i have had it for 14yrs now just they changed the name from parkinsons to dystonia then ET Essential Tremor and now its MS as before they didnt see any leisions now i think i went through my angry stage along time back and i can understand how folks get angry and become depressed as its horrible , but ive always been a what will be will be kinda person , but i also have PTSD which has made me numb to anything and i think that 1 day if i ever get over the PTSD things will come crashing down around me (emotions) but i at present think of it that the old me has gone and this is the start of the new me , the old doors i wanted to open never will but new doors will open , i also believe that it will not beat me to what it wants i will dictate what and when i give in to it.
Its also very easy for me to say this as i am on meds that make me emotionally numb and block out my nightmares and hauntings and in all honesty i think if i didnt have those meds id be a wreck in a bad way but im not and i try to be upbeat about everything but its hard when your in a position that you just dont care about yourself , i make jokes about my shaking and walking etc to my friends and family and im also lucky enough to be in a position of i just dont care what people think when they see me , i.e. the eye patch on a motorcycle is quite a talking point when im in the hospital and in all black leathers and standing 6ft i get old ladies come up and talk which is great as i like old folk as they have so many unheard stories to tell , but and heres the but , i think its different for blokes compared to women as i think and only think that most blokes dont care what they look like but for a woman i think appearance is a factor and i totally understand why.
Front line dealing with folk and the pressure must be big too as like you say if you make a mistake it matters big time , its a shame its effected your ability to work and do your job as i think this is what drives us to get out and about , since ive finished work things have gone downhill but i think they did along time ago i just didnt want to admit it , but the wife and family were worried about me going sea and naturally the RNLI said cheers and thanks and that was that after 8yrs as a ships officer being there day and night all hours
I hope you adjust soon and you are able to get back to what you enjoying doing , take each day as it comes and you will get there if ever you need to sound off or whatever feel free to message me or post up all the best take it easy on yoursself too and be positive and i hope you adjust soon anyhoos i rambled enough , i hope something above helps you or anyone else reading
respect sheep x
Hi Sheep
So much of what you have said makes sense to me and I feel the same way, its been a struggle trying to come to terms with how my life has changed. I am not the same person any more, she is gone and that makes me feel so sad! I have always been very independant and capable and have been a single mum for 7 years to 4 amazing kids and they have lost their Mum, I really feel for them their dad left when my youngest was only a few months old and I have always been so proud of how I have coped and ive done a good job of looking after my family but I often feel that the day is coming when I wont be able to be their mum any more and that really scares me! Simple things like trips to the swingpark and the school run are so hard for me and my eldest daughter is struggling with it all, it makes her so sad and I feel so guilty The emotional effects of my illness are far worse than my pain and immobility I feel like I am going crazy! I have been going to counselling for a few weeks now and it does help but only to the extent that I can talk freely without worrying about upsetting my family and friends.
You have been through so much and you have an excellent attitude to dealing with your challenges, I hope I can find some of that in myself.
Take care, Shar x
Hi Sheep
So much of what you have said makes sense to me and I feel the same way, its been a struggle trying to come to terms with how my life has changed. I am not the same person any more, she is gone and that makes me feel so sad! I have always been very independant and capable and have been a single mum for 7 years to 4 amazing kids and they have lost their Mum, I really feel for them their dad left when my youngest was only a few months old and I have always been so proud of how I have coped and ive done a good job of looking after my family but I often feel that the day is coming when I wont be able to be their mum any more and that really scares me! Simple things like trips to the swingpark and the school run are so hard for me and my eldest daughter is struggling with it all, it makes her so sad and I feel so guilty The emotional effects of my illness are far worse than my pain and immobility I feel like I am going crazy! I have been going to counselling for a few weeks now and it does help but only to the extent that I can talk freely without worrying about upsetting my family and friends.
You have been through so much and you have an excellent attitude to dealing with your challenges, I hope I can find some of that in myself.
Take care, Shar x
Hi Sheep
So much of what you have said makes sense to me and I feel the same way, its been a struggle trying to come to terms with how my life has changed. I am not the same person any more, she is gone and that makes me feel so sad! I have always been very independant and capable and have been a single mum for 7 years to 4 amazing kids and they have lost their Mum, I really feel for them their dad left when my youngest was only a few months old and I have always been so proud of how I have coped and ive done a good job of looking after my family but I often feel that the day is coming when I wont be able to be their mum any more and that really scares me! Simple things like trips to the swingpark and the school run are so hard for me and my eldest daughter is struggling with it all, it makes her so sad and I feel so guilty The emotional effects of my illness are far worse than my pain and immobility I feel like I am going crazy! I have been going to counselling for a few weeks now and it does help but only to the extent that I can talk freely without worrying about upsetting my family and friends.
You have been through so much and you have an excellent attitude to dealing with your challenges, I hope I can find some of that in myself.
Take care, Shar x
Hi Sheep
So much of what you have said makes sense to me and I feel the same way, its been a struggle trying to come to terms with how my life has changed. I am not the same person any more, she is gone and that makes me feel so sad! I have always been very independant and capable and have been a single mum for 7 years to 4 amazing kids and they have lost their Mum, I really feel for them their dad left when my youngest was only a few months old and I have always been so proud of how I have coped and ive done a good job of looking after my family but I often feel that the day is coming when I wont be able to be their mum any more and that really scares me! Simple things like trips to the swingpark and the school run are so hard for me and my eldest daughter is struggling with it all, it makes her so sad and I feel so guilty The emotional effects of my illness are far worse than my pain and immobility I feel like I am going crazy! I have been going to counselling for a few weeks now and it does help but only to the extent that I can talk freely without worrying about upsetting my family and friends.
You have been through so much and you have an excellent attitude to dealing with your challenges, I hope I can find some of that in myself.
Take care, Shar x
I have no idea why that posted 4 times sorry!