Hi
I’m new to this forum and was curious as to whether anyone has had this experience? I got diagnosed with Fibromyalgia approx 9 years ago. Over the last 12 months I’ve had terrible pain/cramps in right calf, numb face, vision issues (floaters) pins and needles and feet and hands and horrible shooting pains in feet and back. My GP has referred me for an MRI as she doesn’t feel these are fibromyalgia symptoms? I just wondered if these sound like MS symptoms please? Thank you xx
I dare say it’s possible to have both. Also, as I understand it (which is only from what I’ve picked up from people posting on here), it isn’t that uncommon for fibromyalgia to turn out to have been MS all along. If you do a search on previous posts on here, you’ll come up with some stories that sound similar to yours.
Gosh, I don’t know. There isn’t a typical , diagnostic set of symptoms. Apart from floaters ( which are pretty common in the general population) I haven’t experienced any of the symptoms you list. I think that unfortunately you will have to be patient and wait for the MRI
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It really can be both. I think a check-up should show it.
In the meantime, for the fibromyalgia, I recommend taking a CBD treatment.
Found online on this site about medical cannabis for fibromyalgia that there is a 77% reduction in fibromyalgia pain reports by patients taking medical cannabis.
The number is pretty high, so it should help.
I was diagnosed with fibromyalgia at first. Fibromyalgia is a diagnosis of exclusion, I think - i.e. there are no definitive markers for it and they say you have it when they can’t find anything else. And the thing is, symptoms like pins and needles also occur for so many reasons.
When I first saw a neurologist, he was highly sceptical about the fibromyalgia diagnosis. Basically, I don’t think he believes the condition existed - he thought it was a cop out and I needed a proper neuro investigation. And sure enough, a bit more proper investigation (MRI, lumbar puncture) showed I had MS.
Whatever the truth about fibromyalgia - maybe my neuro was wrong - it’s worth just checking for MS.
There are far more treatment options for most MS cases than there is for fibromyalgia so it really does matter. Top marks to your GP for referring you.
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Hi! I’ve only joined the forum this evening and your post resonated. I’m diagnosed with fibromyalgia, however my symptoms have been so bad that I asked for an MRI. Had my results back last week - multiple demyelinating lesions indicating probable MS, now waiting for a neuro appointment. So yes I think a lot of the symptoms can overlap, and it’s always best to advocate for yourself if something doesn’t feel right. It’s left me feeling very frustrated with my fibro diagnosis as it feels like all other possible causes hadn’t fully been investigated first. Hope all goes well for you!
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Crumbs, that’s a shocker even if you felt in your bones that there was more to this. Good luck with whatever comes next.