Buzzing in legs with 1 spinal lesion HELP

I’m 27 with 1 spinal lesion, but my MS spinal tab panel was positive.

What is this buzzing and what can I do to get it to go away? 7 days here buzzing where it feels like a phone vibrating your legs 24/7 with no relief in sight. Impossible to sleep. On no meds right now but did 5 days of steroids in the hospital and was there 9 days total.

I’m losing my mind here. Please help me.

Carguychase, when my legs get really bad I very, very firmly massage some skin cream (any will do), as if I’m trying to squash the pain away. That and some CBD paste (orally not massaged!) helps a lot.

Tippy x

Hi CarchaseGuy, You sound as if you are suffering with a recognised sign of MS, called L’hermittes. The MS trust defines it as follows: “In multiple sclerosis, Lhermitte’s sign is caused by damaged nerves responding to the movement of the neck. The movement causes inappropriate communication between the nerves because they are no longer fully protected by their myelin sheath. Sometimes the brain interprets the messages as pain even though there is no physical cause for the pain.” It is a very alarming sign, particularly when first diagnosed. For what its worth, I used to suffer with it very badly, particularly when bending my head forward, because the pain and buzzing shot down into my legs through my spine. It eventually went away with time in my case, but for some, unfortunately, it never really leaves. There are things you can try though - again according to the MS trust website- as follows: “As Lhermitte’s sign is usually triggered by certain movements of the neck, you could try avoiding these whenever possible. As with many other MS symptoms, fatigue, stress and heat can also be triggers so it can help to pace yourself carefully, manage your stress levels and keep cool in hot weather. Lhermitte’s sign can be unsettling as it appears without warning. Mindfulness can make it easier to live in the present moment, rather than wondering if Lhermitte’s sign will affect you unexpectedly. Relaxation techniques such as meditation and massage can be helpful. How is Lhermitte’s sign treated? Lhermitte’s sign is rarely treated as the pain is so sharp and sudden that it does not usually last long enough for pain treatments to take effect. However, there are some treatments that may help if the symptom is particularly troublesome. Talk to your MS nurse, neurologist or GP about your options. Support collars A soft neck brace or collar can limit how much your neck moves and minimise triggering Lhermitte’s sign. Posture A physiotherapist may be able to suggest ways that you can improve your overall posture to help prevent an attack. You may be taught progressive muscle relaxation techniques, deep breathing exercises or stretching exercises which can take the edge off your pain. TENS Electrical stimulating devices, such as TENS (transcutaneous electrical nerve stimulation), are helpful for some people. Drug treatments: The drug treatments for Lhermitte’s sign are the same as for other types of neuropathic pain, usually amitriptyline (Triptafen), duloxetine (Cymbalta), gabapentin (Neurontin) or pregabalin (Lyrica) in the first instance.” Hope this is of some help, Mx