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I am currently waiting for appointments for nurological mapping and MRI , I have many symptoms of ms the list is endless Fuzzy / numb arms and legs , feet and hands feel like they are going to cramp , pain constant pain , head aches that make me slur my words and face drops , blurred vision , feeling of lump in throat difficult to swollow , neck pain , tight belt like feeling around chest and my arm spasms sometime seen others just felt , uneasy walking ( tripping over own feet ) . all these have been going on for quite some time Although not at the same time and never once linked them together . It’s only when I went to the gp because I couldn’t stand the pain . I’m scared , worried and don’t know where to turn . I read that if you have lesions on yr brain it’s prob ms … I Do … When I had my children last one 7 years ago I had I fit … Had a cat scan which showed scaring on my brain !! I have no family support just my children please help x x

Hi Little ginger… and welcome…

Very worrying time for you and no wonder you are so scared.

Of course nobody on here can tell you if you have MS or not. MS is usually difficult to diagnose… and this is because there are literally hundreds of conditions that have similar symptoms. So at this stage there is no way of knowing if it’s MS.

Scarring on the brain is one of the factors with MS… but scarring also occurs in other conditions including epilepsy and being that you had a fit that could account for it.

Even stuff that sounds small and insignificant like vitamin deficiency can cause symptoms exactly like MS… esp deficiency of Vitamins D3 or B12.

Also of course you a caught in a sort of catch 22 situation… which is perfectly understandable. The more worried and anxious you are the more symptoms can come up caused by anxiety, and then the more anxious you become… the lump in the throat, which I have experienced myself, is a classic symptom of anxiety.

Please don’t think I’m making light of your problems. I’m not. Some of your symptoms are MS-like… but until you see a neuro there is no way of knowing if they are caused by MS or by one of the many conditions that cause the same symptoms.

All I can advise you to do for now is to try and find ways of reducing your anxiety… and believe me I know that’s easier said than done!!!

IF (and notice I am saying IF) it is MS, you will then be able to get medications that will help and you will cope. Believe me, just like thousands of people with MS, you will cope. For the vast majority of people with MS, with the help of med’s, they can still live a full life. As you probably know, MS is NOT a terminal condition. It’s one that you can learn to live with and continue to live a happy and full life.

I really hope you can get the neuro appointment soon and find out exactly what’s going on. In the meantime, come on here for support. Lots of people in the same position as you on here… and even you are sadly without family support, you will find plently of it on here.

Hope this helps… and try your best to find ways to relax. Lots of good relaxation techniques on the internet. Also think about going and having a chat with the GP. There some good drugs now for anxiety which will help you through this hard time.

Take care,

Pat x

Hi little ginger and welcome, You’ve come to the right place for support, everyone here is either in the same poistion themselves, or has been. Pat’s reply is spot on; it could be one of many many things which is causing your symptoms, some of which are easily remedied - they’re not all serious possibilities. Fear of the unknown is more often than not far scarier than the actual reality, and we’ve all felt that way at some point, I know I have. Try to take one day at a time, look after you and remember that even though it feels like you’re alone, you’re not. We all understand what you’re going through. While you’re waiting for an appt jot down your symtoms, starting with the worst and most frequent. Try to keep things brief but concise and remember to take it with you. Is there anyone at all who could go with you? Sometimes just having someone there can help. Let us know how you get on. Good luck. Debbie xx (apolo’s for the brick type post…)

Thank you so much , I have been put on amatriptline ( prob not spelt right ) for the pain and have appoint on the 25th July with nuro specialist so hopefully they can rule out what it’s not and put me on the path to find out what is … By reading on here that could talk along time BUT feel much better knowing I can come on here for support THAnk You x x

Hi, I just want to echo what Pat and Debbie have said.

Your symptoms could be MS, but it is possible the lesions are caused by the fit you had.

I know it is chuffin` terrifying for you and that is totally understandable.

You are in a bad state of anxiety, so maybe your GP can help with that.

Youll pull through, cos thats what mums do. we have to.

luv Pollx

Just got back from the gp bloods came back clear so just ordered nerve pathway studies testing ??? As well as the MRI so I now have to wait and see :confused:

Hi Little Ginger,

Good news about your bloods coming back clear !

I’m in exactly the same place as you, limbo land. It’s horrible, scary and unfair, I 1000% sympathise with you. My family are unsupportive and so I’m finding this hard to deal with alone and did the same thing as you which is turn to this site and forum. It’s really comforting to know so many people understand and it helps put things into perspective when you read what some others are going through.

I hope you get the news you need SOON, as I know thats the only way you’ll be able to move on.

Fingers crossed for you, good luck

Emma

Hi Little Ginger,

Good news about your bloods coming back clear !

I’m in exactly the same place as you, limbo land. It’s horrible, scary and unfair, I 1000% sympathise with you. My family are unsupportive and so I’m finding this hard to deal with alone and did the same thing as you which is turn to this site and forum. It’s really comforting to know so many people understand and it helps put things into perspective when you read what some others are going through.

I hope you get the news you need SOON, as I know thats the only way you’ll be able to move on.

Fingers crossed for you, good luck

Emma

Hi Little Ginger,

Good news about your bloods coming back clear !

I’m in exactly the same place as you, limbo land. It’s horrible, scary and unfair, I 1000% sympathise with you. My family are unsupportive and so I’m finding this hard to deal with alone and did the same thing as you which is turn to this site and forum. It’s really comforting to know so many people understand and it helps put things into perspective when you read what some others are going through.

I hope you get the news you need SOON, as I know thats the only way you’ll be able to move on.

Fingers crossed for you, good luck

Emma