I’ve just started on three times a week 40mg Brabio injections. I’m only a week in but have been surprised at the side effects. I’ve had the usual red rash, swelling, bruising and painful injection site. But tonight it’s the all over body muscle and joint aches. I’m really hoping this is a short term problem as it’s not very nice at all. Any comments? Thank you.
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That sounds horrid. Please don’t leave it too long before you pipe up and tell the MS nurse about your side effects. There are lots of other drugs for you to try if this one doesn’t suit you. I would be asking them how long I’m expected to put up with this before they try me on something different.
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Thank you. A couple of weeks in now and the injection site pain and stinging is just as bad, as are the aches and muscle pains. I’m actually seeing my MS nurse this week so will go over everything with her. Unfortunately my other DMD drug options are restricted because of another illness and medication contraindications. Something that I’ve read about the administering of the injection caught my eye in relation to pushing the plunger in too quickly or too slowly causes more pain. I would say I’m pretty slow at doing it. I’m going to try it a little quicker tomorrow night 
!
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Oh that sounds horrible @Cookiegirl . I hope your MS nurse is helpful.
I am on Kesimpta and not familiar with your drug, so this may well not apply. But with Kesimpta, it’s kept in the fridge and you get it out of the fridge a bit before you do the injection, to let it come to room temperature. I mentioned to my Kesimpta nurse that the injection hurt a little more than usual the last time I did it (I’m still only 4 doses in so it’s very new to me) and she suggested getting it out of the fridge a bit sooner so it had longer to come to room temperature. I haven’t tried it yet because I’m not due my next dose for a few weeks.
I don’t know if that’s something that’s possible with your drug, but could be worth a try if it is?
Wishing you all the best
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I’m a month in now and the stinging pain is just as bad. My MS nurse advised I take an antihistamine to help but it’s not doing much to be honest. She also said that there might be the opportunity to change the medication to Copaxone. Apparently even though it’s the same drug, it’s made by a different manufacturer and for some bizarre reason has less side effects. We shall see!
Two full months in and I now just find the sting and rash an annoying painful inconvenience.
The muscle and joint aches have got worse and the latest is now the uncontrollable chills and physical shakes that goes with it, usually starting about 30/45 minutes after the injection, lasting up to an hour or more. I find this new side effect the worst and most upsetting.
Please tell me this eases with continued use?! Thank you for any tips xx