blurred vision on and off

New diagnosis and before diagnosis
1

Hi all,

having been oblivious to not realising I possible could have MS after visiting the Nuero on the 18th October ( he mentioned it in the last 10 mins of our appt) and not thinking all my sypmtoms could be connected until reading this site, everything is now slotting into place, for me its a Eureka moment. But now I feel on an up hill struggle as I have not mentioned alot of my symptoms to my doctor or Nuero thinking they would think I was neurotic. Starting with blurred vision on and off throughout this year starting from a episode I had in January and was admitted to hospital with a feeling of disorientation and weakness on left side and numb tongue, making eating and swallowing difficult. I just thought my blurred vision was an age thing and spec savers just gave me stronger lens. I did not mention the pain in the eye to them. So seeing an optician this afternoon but not the factory time limiting as Specsavers, also seeing my doctor next thursday evening to see what I can do next as after speaking to my Nuero secretary this week, the Nuero has discharged me. Just wondering if this has happened to anybody else? and what did you do next. My Gp never referred me originally to Nuero it was the hospital doctor in January, the first Nuero I saw was not very helpful and blamed my age for the symptoms (I am 50), but he referred me to see a Nuerosurgeon for an operation on my neck, he was not happy and referred me back to see another Nuero(which was the one in October) and he brought up MS in the conversation. Any tips would help feel I am not going bonkers…

Catherine

2

Why would a neuro talk about MS and then discharge you? That doesn’t sound right! It is really important for a neuro to have a proper understanding of a patient’s symptoms and any pattern of how these present, but we have to try and balance this against the long symptom list red flag (a lobg list can cause neuros to jump straight to ‘functional disorder’). if you liked this latest neuro, then I suggest what you do is write him a letter saying that you think you may not have properly explained what’s been happening and asking him to review his decision to discharge you. Then attach a one page summary detailing your symptoms and how long they lasted. Do this by date (month/year) so he can see any pattern. What you do next will depend on the response, but at least you know he knows everything. Kx