Heya…sorry to hear of your problems.have you spoken to your gp/continence nurse about intermittent self actheterisation? I have beein doing ISC since 1998 Its quick, easy…and can be done out of the home…even in the car(if you are vaught short and cant get to a public loo…you can attach it to a catheter bag and take it home with you)…it can also enable you to empty pretty much completely so therefore giving you more time before next one…2-4hrs depending on what your fluid intake it slike. Its an alternative to an in dwelling catheter…nothing against them but they can cause infection and bladder spasms in long term use…Ive only had one a couple of tiems…bad kidney infections and a long haul flight to OZ and i couldnt get to the loo and the flight attendants couldnt assist me …
hope this is useful…
Hi Scoobie68 I have actually tried ISC but it was found that I was hardly getting any urine out as I was emptying really well, it just takes a long time! Thanks for your comments. If that has to happen eventually, I guess I will have to live with it, but for now I don’t think it is necessary. Teresa xx
Hi teresa…ahh ok…well glad you tried it…see how you get on…but I see your point re being able to go but taking ages to empty…are there any meds you can take to help? sounds like its a fine line between letting your bladder do its own thing…and whether it can be helped
…before I started ISC I used to find the flow stopped…started and stopped again…it was like my bladder didnt know whether it was starting…stopping…and more often than not it was stopping before it had emptied…I am not sure if the spasms I got after starting ISC were there before…and it may be that doing ISC highlighted them…I do ISC now from a little stoma by my belly button…(looks like a body peircing)…as I couldnt get the catheter in the usual way…or even worse…out and would be stuck on the loo for a few hrs…as spasm gripped the actheter so hard…!!
x
Hi Theresa
I have problems with my bladder, I was having a UTI every month until I started having Hyperbaric oxygen therapy (HBOT) at my local MS Therapy centre. I’ve been going for a year now and in that time I’ve only had 1. I also have an overactive bladder and I use Oxybutinin patches (Kentara). I’m hoping that this improves with time.
Lynne xx