I’ve had a really rough time with my MS since August. Moving into a part finished house in the middle of nowhere with a baby probably not the best thing for the condition. I’ve lurched from one thing to the next, constantly in that fatigued fog, loss of balance, sensation in hands and feet and tongue. Oral steroids prescribed by my doctor have been useless. I’ve just moved to a new consultant and had MRI and bone scan, got a letter to say that the disease is active at the minute and they don’t really want to give me any more steroids as my bones are a bit on the thin side so can I go in for an appointment this week to discuss Tysarbri (tried all the DMT’s in the past and not got on with them that well, have been managing with just steroids). Think its inevitable but I’m scared of the side effects of the Tysabri and leaving my OH to deal with 4 children on his own!
In the mean time I have to go to a meeting with my boss as I’ve been signed off sick since the end of my mat leave in October due to this ongoing relapse, he has documentary evidence from occupational health to say I’m not fit to work, but wants to talk about getting me back in some way. I need some time and a miracle to get me up and running again. Making my own bed involves so much effort I often have to climb back into it afterwards.