Lately, I’ve been really struggling with MS fatigue, and honestly, it’s on another level. It’s not like normal tiredness… it just comes out of nowhere and completely wipes me out. Some days I feel okay, and other days I can barely get through simple things. I’ve been experimenting with a few small changes. One thing that kinda helps is not overloading myself. If I spread tasks throughout the day instead of doing everything at once, I don’t crash as hard. Also, taking short rest breaks in between makes a bit of a difference. Sleep has been a big focus, too. I’ve been trying to fix my routine, like sleeping at the same time and reducing screen time at night. It’s not perfect yet, but maybe slightly better than before. Also, I noticed heat really makes things worse for me, so I try to stay cool as much as possible. I recently started light activity, like short walks. At first I thought it would make things worse, but weirdly sometimes it helps with energy later… still confusing tbh. Food-wise, I’ve been trying to eat cleaner and avoid junk. Not 100% sure if it’s helping or just in my head, but I’m sticking with it for now. Still, there are days when nothing seems to work, and it gets frustrating.
Just wanted to ask:
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What has actually helped you deal with (removed by moderator)
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Any routines or small habits that made a real difference?
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How do you balance daily responsibilities when energy is so unpredictable? Would really like to hear from people who are going through this; real advice matters more than anything.
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I didn’t even understand what fatigue was an same traveling i just want to shut my eyes this is happening move than I can explain. But also my sleeping pattern is on an off. sometimes I’ll so weeks with only 1 to 2 hours an other days my stuff got to be arranged neatly an I’ll keep doing it over an over. Now it feels like I’m back at beginning weight dropping off my appetite not there. Food tablets getting logged at very back of throat. Bits of sick coming up again. I’m just exhausted thinking of what’s been happening in these last 2 years. An how bad my walking got nearly to none existent. Balance I’ve completely lost that I’m sick of feeling like I’m on a snowboard that ready to just from under me I’ll say night for now yall take care 
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Hi @polpiop
Thanks for your tips - MS fatigue is well and truly kicking my butt at the moment, so I appreciate some ideas.
I have been referred to occupational health by my MS nurse for fatigue management. Hopefully the appointment will come through soon. I wondered if that’s something you could ask your MS nurse about?
I think the MS Society also offer a free online fatigue management course which is supposed to be good, but I haven’t done it myself (yet).
I try to pace myself and have lots of rests. That helps. I don’t think I could manage otherwise.
I feel so guilty though and like I am a burden to others. And I am grieving the life I am not having.
It’s a lot to process isn’t it?
I hope you are ok.
Alison
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Hayley - if you haven’t already, get a referral to your nearest Speech & Language Clinic - they specialise in all things to do with mouth, tounge, larynx, swallowing issues etc. They will be able to evaluate and help with your swallowing issues and perhaps the reflux too (bits of sick coming up again). I know my local clinic has helped me hugely in this respect. In the meantime try several smaller meals a day and take tablets with yoghurt (that’s what I was advised to try and it actually works!).
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Hi Polpiop - Fatigue, arghh, I think most of us know that feeling. You seem to be doing pretty much what is advised to help with fatigue. Breaking tasks down into smaller chunks, taking regular rest breaks, keeping cool, hot weather/central heating (yesterday at work I started feeling drunk/tired before it was noted that the CH was way too high for the whole office - cue standing outside short sleeved on a damp and murky windy day for 20 minutes with an iced drink to cool off properly :))
The 3 biggest things that help with mine are meditation during my rest breaks (I find it helps with my pain levels too); hyperbaric oxygen therapy at my local MS Centre (Brightwell Centre) which I find helps with fatigue and balance issues; and Taekwon-do, I know it seems to go totally against what seems sensible for a condition that causes monumental levels of ‘tired’ (also balance issues - they are used to me face planting randomly), but I have much lower levels and incidents of fatigue when I train regularly; not to mention sleeping like a log after each session (I have issues with pain/cramping/sleep disruption).
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Doctor’s did refer me it got knocked back doctor was only here yesterday along with OP he put my baclofen up doctor said I’m deteriorating badly since he last saw me. I just don’t know what else to do. Op seen what I saw with that property not good she refused it
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