Hi, I have after many years had an MRI and been diagnosed with the likely this is MS. Had a failed LP and waiting one under XRay. I am actively having symptoms I think as I tried to put and explain these but am struggling as I don’t know what is real anymore . I have had is menopause, fibromyalgia, whinny woman syndrome, overweight and neurotic. Take these drugs as you are depressed.. how do o know what to tell them anymore ..
any advice welcome as in a bit of a mess
Feel sorry for yourself..at least for a while, whilst you get your head around what is a life changing moment for you. How life changing comes down to two things in reality. One is us. And secondly is how the ms manifests itself. And it affects all of us differently. And nobody knows how it might affect us, going forward. Tell family and friends in your own time and it’ll be up to them how they choose to react to your diagnosis, if indeed you do have ms @rachel.sian.hart none of us can predict how others will react, but hopefully they’ll be kind and understanding with what will be the.. new you. Make a record of whatever symptoms you might have so you don’t forget when you see your consultant, GP or any specialist nurses you may see. Read up about anything you might want to see, the drugs now available. With the DMD’s that are now available you could be stable without any diminishing mobility issues or other health problems that can arise from ms for many years into the future, if they deem you suitable to receive them. Wishing you all the best @rachel.sian.hart and I’m sure that you are not a menopausal, neurotic, whinny old woman! But just a lady who would like to know what it is that’s happening to her without any prejudice or unkindness along the way.
Thank you so much for the reply. Very appreciated.
It is very overwhelming and so slow. I told my family as need some help at the moment as so overwhelmed with tiredness and the flu has not helped with looking after my busy 9 year old.
It is like I have given my self permission to just stop fighting the symptoms for a week. being told in work and then no contact or anything just leaves me at this awful loose end waiting for another LP appointment whilst you feel so 
. Only source of info is internet and everything and everyone is different. I want to see my MRI. I want to see what has happened and where it is as if this will helP me see what is going on.
Family knows and no idea what to make of their reactions.
Thanks again moaning over as it is Christmas and this flu is finally breaking.
Xx
Hi Rachel,
i am glad you are getting past the flu. I had it too and it was awful. It took 16 days for me to feel back to normal.
It’s ok to rest and not fight your Ms symptoms.
When you have a bit more strength you might find it helpful to make a list of your symptoms. You could group them together into groups that make sense to you eg things related to legs, balance, bladder, pain etc - whatever works for you.
And try to put timescales to each symptom eg 'I fell over 3 times in June 2025’ or whatever it is.
And say whether symptoms are still ongoing now or if they have stopped and when they stopped.
You might find it helpful to look at the MS Society website for information about MS symptoms and see which ones apply to you.
This is all advice that my friend gave me - she is an MS Specialist neurologist in another part of the country.
She also suggested to me that I get an OCT scan at the optician which can check for signs of optic neuritis which is an MS symptom.
I hope that’s helpful.
Sending warm wishes
Alison
I’m sorry I don’t really have any advice but just wanted to comment to say your post really touched me as your situation sounds so close to my own. I am waiting for a neurology appointment with MS being one of the possibilities so no diagnosis yet but I feel so lost and confused( especially as the wait for neurology is so long). I also have a busy child to look after(10 not 9), and have fibromyalgia and menopause. It has felt for years something else is wrong burly there are so many crossover symptoms and everything just gets brushed aside as part of what I already have.
Sorry again I do not have any advice but I hope it might make you feel better/less alone to know someone is feeling a similar way. Reading your post definitely did for me! Xxx