Where does the m.s. vocabulary we use come from?
We talk about being ‘fatigued’ which isn’t a term I would use when I feel too ill too do anything.
‘Relapse’ is a vague rather meaningless term -
and don’t get me started on the term ‘benign’
Do these terms and others serve the medics better than us - it is easier for a medic to talk vaguely about us having a ‘relapse’ rather than have to respond to someone who is telling them they ‘can’t walk properly’ ot their arms are ‘weak’ etc.
Easier for a medic/neuro to pat us on the head and tell us we’re ‘fatigued’ when in fact we’re so ill we can barely move!
Secondary Progressive Multiple Sclerosis - has the psychological effect of this terminology on us and our relatives ever been assessed?