My lesions are in my spine not visible in my head so some neurologists I have visited tell me I don’t have MS. Has anyone else experienced this?
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I’m no expert but, as far as I’m aware, MS can be diagnosed with lesions anywhere in the nervous system. mine are on my brain and, I have none in my spine yet.
it can take a while for them to figure it all out so, they may be still looking into yours 
someone may be along soon with a better answer for you.
take care mate x
jon.
Thanks Jon, glad you believe the same as I do. And yes, perhaps things will become clearer with more investigations. Hope you are managing life ok. You take care too.
Maggie
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Hi @lycettmaggie . See below from the MS Society and the McDonald criteria .
https://www.mssociety.org.uk/about-ms/diagnosis/the-tests-for-ms/mcdonald-criteria https://www.mssociety.org.uk/about-ms/diagnosis/the-tests-for-ms/mcdonald-criteria
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I whish they would tell me that 
. It could be a number of things Maggie and i hope it’s something that’s easy fixed/controlled and doesn’t worsen. Have they done a lumbar puncture?
Read this Multiple Sclerosis Spine Lesions: Causes and Tips for Prevention | MyMSTeam
Mac
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Thanks for your response Hank, yes, early on they did a LP which seemed to confirm MS, but my symptoms have progressed slowly and ( luckily for me) been quite mild. This summer symptoms suddenly became very varied and intense. I had to see a new neurologist who refuted the diagnosis beecause I don’t have ledions in tje brain. Hence my question. Hope your experiences with neuroligists have been better. Take care Hank
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Hi Mac, yes indeed!! It seems to depend on the individual neurologist and how knowledgeable they are. I had a Lp early on that confirmed MS but the new neurologist I saw recently refuted a diagnosis of MS as no lesions in brain. In November I have an app for a second opinion. I have just read the MacDonald Critea used to diagnose MS. Interesting read Mac if you haven’t done so. Wish you good luck. Take care.
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Hi Maggie mcdonald criteria sure is interesting, and i hope it gives you questions for your upcoming appointment. Also hope that the new neurologists where right and you don’t have MS, and it’s something that can be dealt with easily and doesn’t get worse with time.
Take care Maggie and good luck with your appointment in November.
Mac
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Thank you Mac. I hope so too! Fingers crossed eh. Will keep you posted. And please let me know how you are doing?
Take care
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Spinal lesions but no visibly detectable lesions from an MRI on the brain still produce OCBs AFAIK.
Were you given a clear answer as to your CSF showing OCBs, from your LP? No offence but “seemed to confirm,” is quite vague.
Hi Gman, thank you for your response. No offence taken. The first MRI that I had re MS showed a single non specific high signal white matter lesion in the left frontal region. The LP showed OCBs in my CSF. At a later date a spinal MRI showed small lesions in the soinal cord. In the.basis of these I have been told that I have. MS. The last neurologist I saw told me I didn’t have MS as I had no lesions in th brain on my recent MRI. So is it or isn’t it MS?
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