I posted last week that my 18 yr old daughter had been told and yet not told that she has MS (she had a CIS 4 years ago, and has had symptoms on and off since then... last week we saw a neuro who confusingly said she doesn't have MS now (despite new areas of demyelination on her MRI scans) but that she has an 80% chance of getting it in the future.
So - today we heard that she has an appt to see the same neuro on Weds (yikes!) in his MS clinic.
So my Q is - what should we be asking him? We are so new to this that I feel really uncertain . I imagine we won't get to see him again for a long time, so I want to get everything covered... her main problems are fatigue, and joint and muscle pain - but she also has a problem with word retrieval and with continuing double vision... my feeling is that I need to ask about all these things. What else should I be pushign for? A diagnosis, maybe?!
I should say that my daughter is so terrified that she doesn't want to see him again - she wants me to go for her! Poor girl. Fingers crossed, eh?
Thanks for any help and advice!