I am not officially diagnosed - I have appts coming up in October that will hopefully answer alot of questions - right now my physician is not sure - i am older (51) an have had many symptoms over the years but always one thing - looking back now MS or Parkinson’s seems realistic if someone had bothered to connect the dots.
I await my appts coming up to hopefully help with a diagnossis of what is wrong with me.
I am struggling with Appetite- I simply do not have one - and I also cannot no longer tell when i am hungry - I get no hunger pains at all - I usually figure out I am hungry when i start feeling light headed and realize how long its been since I have eaten last .
anyone else have this problem?
also - Leg cramping and spasms - I take Levodopa 250 mg every 6 hours - if I miss a dose I start to look like an crack Addict - I cant sit still - my legs spasm and cramp and the pain is unbearable.
i also have major brain fog -and nmy eyesight is awful after being 20/20 most of my life.
i am also quite clumsy these days. I trip over air it seems.
the best AI felt waas a few weeks ago when I had a headache of epic proportions that affected my sight even worde and the ER Doc gave me an IV with Steroids in it . I felt almost normal for a week after that.
Welcome to the forum, lots of lovely people here, always willing to listen, and offer advice when they can.
Now you have an appointment with a neuro, you are definitely on the right path to hopefully find out what the problem is and rectify it, as there are lots of things that imitate ms, that can be fixed with medication.
If things are the same in Canada.as they are here in the UK, then you will have bloods done, quick medical tests done like reflexes and balance etc, and hopefully an Mri will be ordered.You will need patience at this stage, as these things can take a while to process, but being in the system is the first step. In the meantime, make a concise list of symptoms to take with you, and if possible, have a family member or friend with you, as the appointment can pass quite quickly, and it’s easy to forget something they may have said.
Hope your appointment goes well, let us know how you get on, but any more questions, ask away, someone is usually around with an answer.
You seem to be having a bad time at the moment but you’re in the right place for kind words and support. A lot of us share your symptoms and there are some treatments for these. I think it’s best to try everything you can as we all react differently.
Welcome to our “gang” lots of lovely people here, always willing to listen, and offer advice where they can. I suppose you could say that our club is not the one that any of us would have chosen to join, but we are all here doing our best.
If you have any questions, please feel free to ask, someone will be around with an answer, or if you prefer start a new thread (at the top of the page) and tell us a bit about yourself.
Make sure you are drinking plenty of water- keep hydrated. Take lots of Vitamin D3 /Magnesium - will help with pain spasms brain fog - so will B12 and all the B Vits.
This will soon get your feeling better and awaken your appetite.
Just google - Vitamin B12 deficiency MS and Vitamin D3 deficieny MS also Magnesium and MS.
Most of the prescribed meds for MS actually deplete our vitamins - Look at joining groups - Free lndeed Vitamin D Protocol - and