Hello everyone. I haven’t been posting for a while and just want to apologise for being anti-social. It’s like this…
I seem to have got myself into a fairly comfortable place. There’s a simple rhythm to my life; things happen to a pattern and the weeks pass. I call it my bubble. I have fewer down days, I think I have arrived at some sort of acceptance of my situation, and for the moment the progressive bit of the PPMS equation seems to be on hold. So despite the discomfort, the pain, the disability and its frustrations and limitations, I find myself being ludicrously happy for a good deal of the time.
So part of being in this bubble is not wanting to think, read or write about MS. I pop in to read on here occasionally, but I’m not contributing or offering support. Hence the apology. (Had a chat with Don on the weekend, he kindly keeps in touch, and he said there was nothing to apologise for. I really hope that’s so, but I can’t help the guilty conscience! Anyway, thanks Don.)
i’ve been busy with several musical projects. This gives me focus and satisfaction. Now I really enjoy reading the blogs that several of you are busy with, and although I don’t do one myself (tried it, couldn’t maintain it) I realise that my music website is really my own version of a blog. It’s http://www.kevadams.co.uk/index.html. If you take a look and a listen, hope you like it.
Right, back to my bubble. Lots of love to you all.
I have been on to Kevs website and have been listening to his music. Glad you have found a happy place mate, acceptance is so had yet so good it shows you are comfortable and long may it continue.
Ah Kev, I think it’s a little sad that you feel you should apologise. What for? For having the monster MS? for feeling down? for being tired? It is darned hard to climb the mountain of wet mud wearing wearing boots full of clay. You’re clearly trying to get your head around it, and see a fab way to find your very own bubble and fill it with your fave music & share it to everyone. Fab x. Really pleased you’re coming to terms & acceptance. Sieze the good days, accept the not so good & rest on the bad. Take care Kev xx
Hi Kev, good to hear from you and good to hear you are in a good place. Not sure if I am there yet but I keep trying. I still have the odd tantrum much like a two year old.
My father in law died a couple of weeks ago after having Alzheimer’s for a few years. When we went to see him in the home I used to love it when he rebelled a bit as it showed there was still a bit of the old him still there.
Pleased for your bubble and long may you stay there but please don’t apologise for it. I’m well jelous.
Great to hear from you Kev and absolutely no need to apologise!
I’m so pleased you have found your bubble. It really helps enormously to find that place where you can live with MS. Yes it’s acceptance and strangely it does seem that MS starts behaving itself a bit better when you find that place.
I think people are often sorry for me as I don’t go out much (well except for this darn radiotherapy!) but I don’t mind at all. I am so happy staying home, doing my needlepoint tapestry, watching films, reading, playing with Dickie, or just sitting and staring. That’s my bubble and I’m really pleased I found it.
I also seem to live in my little bubble, where I am quite happy to do my own thing. Acceptance of this monster is definitely good, it’s the right path to take if you can, it just takes time to happen.
I’ve been out to a funeral of a good friend today, which brought it home to me how lucky I am to still be able to enjoy the good things in life, amongst which I include the companionship we get from this forum.